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What support should be put in place

ParentingAutism

I need advice about what support and help should be put in place to help in school also possibly at home. 

After my daughter's exclusion, for violence towards staff, the school have tried different techniques and have found a different reason for her behavior. It's due to little things during her day and more and more adds up in her mind and she explodes. She has one of her favorite staff, who she can talk to at the end of every day and they do a comic strip about her day so she can see what was going through her mind and what happened because on a tricky day, she can't remember what happened. They have put a social story in place explaining that when she wants space and to be left alone, she can be in her classroom, OT room or sensory room and staff can wait outside if she's safe. 

She is not sticking to this and still wanders round the school but does go in and out of the small sensory room. She did hit a member of staff today, not sure why because she wasn't provoked apparently. They also found out that she likes being held. She will be held, when it's needed and she doesn't want them to let go when they offer and they end up linking arms standing against the wall chilling and talking. It's strange, very strange. Being held clams her down in minutes, depending who's around. She has to be held every day more than once. Sometimes she will put up the biggest fight that they have to let go or she won't and they stand holding her when she's calm. All we know is that her mind is exploding before the hold, then after, she's calmer and she's unloaded it. It's a pattern which they are seeing in the comic strip they are doing. 

What can we put in place. I hold her myself when she needs it, so does her father and school do as well. It's frequent and we try giving her cuddles but she pushes us away. What else can the school do to help or put in place and what would help at home that we haven't tried. I'm out of ideas. Sorry for bothering but I have no where to turn. 

Parents

  • I just want to know why she is just so aggressive. Why does she keep hurting staff unprovoked and she's just really struggling. Her whole life we have had to hold her because she tries hurting people or herself through meltdowns and overload but now, she's having to be held like 1 to 3 times a day. They won't want her soon because she's so aggressive. And what do I do then. I can't homeschool her and she said she's happy in school even though she is struggling and I really do believe she enjoys going let alone what she's going through. I've struggled with her behavior ever since we moved house and school, when she was in Year 7, now she's year 11 and has to knuckle down and learn for her GCSEs which she can't do this academic year because she hasn't completed enough work, so maybe next year. 

  • in reply to ParentingAutism

    You have said before that your daughter enjoys her weighted blanket. 

    Are you or the school able to purchase a weighted vest or a weighted hoody or a weighted hat? These items will give her the pressure she’s seeking. 

  • in reply to Lau

    Unfortunately they can't and won't and I don't have the money to buy one for her because they are expensive otherwise I would've done that ages ago. We are very tight with money at the moment

Reply Children
  • in reply to Lau

    Could you ask your child’s educational psychologist or educational council department where to source these items from or for similar items you feel she would benefit from? Usually they have a duty to put things in place to support the child’s day.

    For example my child has a wobble cushion and a bouncy band on the legs of his school chair. All provided for by the school. 

  • in reply to ParentingAutism

    Could you make an application for funding from Family fund? Caudwell Children? Both my children have been granted funding from family fund for the past two years and caudwell Children has provided sensory toys for my youngest. I believe you have to be in receipt of certain benefits and below a certain amount of wage can’t remember how much though. 

    Are you England or Scotland? If your in Scotland which I where I am all local council areas have carers centres and the staff within there can direct you to service which can provide funding for disabled children.