Teen son with autism, adhd, depression and epilepsy

Hi everyone 

just reaching out.. 

I am not sure where to turn next, my son is 17. He has the following diagnosed conditions; autism. ADHD, depression and epilepsy. He’s not had an easy life, but we are at rock bottom, somehow we kept him in mainstream school but he has now left school mid way through his alevels. He was being billed for being weird, he has now not left home for over two weeks, incredibly depressed and will not leave his bed. He had been on a range of drugs, personally I do not think they have helped, he had been on sertraline  for years, and topirimate for the last two years for his epilepsy. He has lost most of his hair on top, and his specialist and psychologist would not acknowledge he was loosing his hair. He had not eaten a proper meal for over two years, he is skin and bones. He hates me and will not take any advice from me, I suffer with my mental health also and had a breakdown about 6 weeks ago. 
not sure what I am hoping for from posting on here, my wife said to mr I need to accept that he will Kill himself soon and his age expectancy is much lower. I just feel hopeless and alone 

Parents
  • Here's some WILD advice from a mum of a 25 year old young man: Buy him a video gaming system and put zero limits on him playing it. Allow him to check out for the rest of the school year. Give him an excessive amount of time to recover.  School will always be there. Leave food at his door. Help him clean his room until he politely says he'd rather do it himself (ask for bedding once a week and hand him bedding to change, this way he takes part in one increment of movement.) Go for a walk every day at the same time and invite him until he says yes. After he seems a little more healthy, find an exercise he likes - rock climbing, weight training, judo, anything. Just once a week until he desires further. Make sure he has incandescent or halogen lighting in his room. 

    Also buy him a multi vitamin, inquire about ashwaganda (Pukka Herbs) with his GP to try something new for the depression and ask about CDB. It sounds to me like he needs a year off to completely re-set his entire system. If he doesn't learn immediately the value of appropriate down-time, the value of a proper time-out, the value of recognising, understanding and obedience to his limits, you could be offering him an early grave and a terrible life. I wasn't told this when I started as a parent, but eventually I learned: Managing to forcibly keep my son in something that was destroying him is similar to forcing him to eat a little something poisonous every day. I'm fairly certain neither of us would do the second. 

    After my son's father passed at 20, I was able to help reconstruct him psychologically. Now at 25, his depression is gone. He can recognise when he needs a man-cave for a day to recharge. He's incredibly intelligent and this is the first year he has suddenly expressed excitement and interest in the possibility of a career. He's 180 degrees different. He's gone to Waterstones to buy various self-help books he's interested in and we talk about them. He may go back to school at some point. He just barely made it through High School and Uni but near the bottom of his class. But right now he's thriving - not just barely surviving. He needed a break, a psychological and mental shift and this doesn't happen over night, it takes years of diligence, learning integrity and values, learning how to be human and accept human flaws, learning what my strengths are. But none of this can happen when I'm mentally beyond exhausted or at a breaking point. First I need to heal and that may mean just finding space being / existing  and doing - or even finding small things that I enjoy. 

Reply
  • Here's some WILD advice from a mum of a 25 year old young man: Buy him a video gaming system and put zero limits on him playing it. Allow him to check out for the rest of the school year. Give him an excessive amount of time to recover.  School will always be there. Leave food at his door. Help him clean his room until he politely says he'd rather do it himself (ask for bedding once a week and hand him bedding to change, this way he takes part in one increment of movement.) Go for a walk every day at the same time and invite him until he says yes. After he seems a little more healthy, find an exercise he likes - rock climbing, weight training, judo, anything. Just once a week until he desires further. Make sure he has incandescent or halogen lighting in his room. 

    Also buy him a multi vitamin, inquire about ashwaganda (Pukka Herbs) with his GP to try something new for the depression and ask about CDB. It sounds to me like he needs a year off to completely re-set his entire system. If he doesn't learn immediately the value of appropriate down-time, the value of a proper time-out, the value of recognising, understanding and obedience to his limits, you could be offering him an early grave and a terrible life. I wasn't told this when I started as a parent, but eventually I learned: Managing to forcibly keep my son in something that was destroying him is similar to forcing him to eat a little something poisonous every day. I'm fairly certain neither of us would do the second. 

    After my son's father passed at 20, I was able to help reconstruct him psychologically. Now at 25, his depression is gone. He can recognise when he needs a man-cave for a day to recharge. He's incredibly intelligent and this is the first year he has suddenly expressed excitement and interest in the possibility of a career. He's 180 degrees different. He's gone to Waterstones to buy various self-help books he's interested in and we talk about them. He may go back to school at some point. He just barely made it through High School and Uni but near the bottom of his class. But right now he's thriving - not just barely surviving. He needed a break, a psychological and mental shift and this doesn't happen over night, it takes years of diligence, learning integrity and values, learning how to be human and accept human flaws, learning what my strengths are. But none of this can happen when I'm mentally beyond exhausted or at a breaking point. First I need to heal and that may mean just finding space being / existing  and doing - or even finding small things that I enjoy. 

Children
  • Thanks for the reply, sorry to hear about your husband. Some great advice there, and I will adopt some of those practices, I feel ill be asking him to come for a walk until I’m 100! Great that your son is now flourishing, my lad is also super talented and I really hope he finds his calling, I’ve just never seen him as depressed as this and I’m concerned for his welfare but do not know what to do next. I think I will just have to leave him alone, I’ve been bringing him food up to his room and just leaving it with him, if I did not do this he would simply not eat 

  • *note the lighting. I would put incandescents / halogens in my entire house if my son were epileptic. I have LEDs in just a few places, but if you cannot catch the minor flux of LEDs in decay or even perceive the cheeper bulbs in their cycle, then you won't notice how grating and difficult these lights are for an autistic, let alone someone epileptic to live under. 

    I am actually quite angry that city councils have allowed these flashing LEDs on bicycles and scooters. This needs to change in society. I have several friends who are epileptic. There are too many dangerous situations for them on a daily basis and online.