Newly diagnosed today

Hi, please bare with me, I'm new here and not sure if I'm posting in the right place.

My soon to be 7 year old was finally diagnosed with autism today. It's been a long 5 years of fighting and constantly proving ourselves to people.

We were told in the consultation room that 'your son has autism' and given a copy of this webpage to join up to then nothing else and we left.

I was in a bit of shock at the time so didn't ask any questions, what happens next, how do we tell him, does this change anything.....can anyone give us a bit of insight please? What does happen next? Is it best we tell him? Will school offer more help etc?

Thanks for any help

NAS75352 over 4 years ago

your not alone jellybean, school should help but they need funding, which they have to apply for. my grandsons school has asked my daughter to fill out the forms for them , its a long battle but you on track now . contact school and ask what help they will put in place to support your daughters needs
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NAS75312 over 4 years ago

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SarahMod over 4 years ago

Hi Jellybean, yes you are in the right place! Welcome to the community

You may find the following page our website useful: //www.autism.org.uk/advice-and-guidance/topics/diagnosis/post-diagnosis-support

If you have any other questions, or wanted some advice, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Friday 10am to 3pm).Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser.

Also, the following are links for education information for a child with an autism (not sure if that is something that you have been looking into but thought it might be useful): https://www.autism.org.uk/advice-and-guidance/topics/education This includes information regarding getting extra support for your child in their education setting.

You can also search for schools that cater for children with an autism spectrum disorder on our Autism Services Directory: https://www.autism.org.uk/directory

Finally, you may want to contact our Education Rights Service who provides information, support and advice on educational provision and entitlements. Please see the following link for further information: https://www.autism.org.uk/what-we-do/help-and-support/education-advice-line

Hope that helps!

SarahMod
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Mariusz over 4 years ago

I wish I knew at that age. My mother did not tell me that there were some suspicions and she did not follow upon them.

so instead of ''I'm autistic'' I thought ''There must be something wrong with me''

first hint that it might be autism I received when I was 37

signed up for test at 38

Self diagnosed myself at 40 only to feel like a fraud

finally diagnosed at 42

now I can begin understanding myself
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