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How can I best be supported?

TheShin1991
over 11 years ago

I am 21 years old. I have dyspraxia, meres Irlen syndrome and an auditory processing delay. I have a very close friend who is effectively my 'main carer' at the moment, I am very reliant on her help and support at the moment especially out of the home environment in the community.

I am currently experiencing a lot of problems and a waiting official assessment and diagnosis. Over the last 8 months I have noticed a huge deterioration in my 'behaviour' and ability to cope with being me. This has included huge meltdowns, an increase in obsessive behaviour, fairly constant sensory overload, self harming (biting, scratching, hitting, using implements such as razor, burning etc etc) worse than ever, flapping and rocking, big social issues, huge problems with change and just generally being very on edge and hugely unpredictable.

We have struggled a lot to get any help. My friend is not very experienced in problems like this and I am struggling to explain to her how to help me and support me especially when I am having a meltdown or really how I feel when it happens. Before I have used sensory rooms and stuff but there is none as far as I am aware in Swindon... Anyone got any advice or tips that we could use to try and reduce/ manage this behaviour and things because it is really ruining my day to day happening.

  • over 11 years ago

    Function is connected to behaviour.  I would suggest some professional assistance, maybe the NAS can sign post you away somewhere else or send you a leaflet. If your condition has fluxed recently in the last 8 months, this maybe be due to added stressors in that time, so if identified and dealt with, so you may recover back to your original level, given good assistance by your main carer. Smile

  • over 11 years ago

    I just would like to be able to 'function' normally and there not to be a problem in everything that I do throughout the day. It is exhausting and scary. I don't understand what is going on :S

  • over 11 years ago

    What do you want at these times? If you could try and work out what would help you then you can think about how they could help achieve it.