Feeling frustrated for missing the obvious

Evening folks,

We have a beautiful 18 month old daughter D, at 12 months there was no waving, clapping, pointing or speech at all. Shes our 3rd child lockdown baby I gave her the benefit of the doubt and told myself at Christmas if things hadnt improved I'd seek advice. 

Christmas came and went and still nothing. She didn't get a 9-12 month check from a HV which i now regret chasing up but obsv6 homeschooling two others (onw of whom has Special needs but not ASD) was time consuming. And having a baby who kept herself amused, was honestly a godsend. 

I know this baby girl hasnt got hearing problems. She can hear me open chocolate a mile away. 

I have completed the ASQ for 18 months and MCHAT even though our LA don't use it. And she was so low on both. 

She attends nursery 4 days a week since Christmas and today they screened with Wellcomm and she scored 2 out of 20.

I am in a horrible weird stage of grief and devastation, i have done all this before fighting services for my son. Applying for EHCPS without support, getting him a place in a specialist setting. It was an absolute battle and I never thought id have to do it again. Yes his circumstances where different and he isnt ASD. But I instantly feel defensive and fight or flight. 

Because of Covid nobody has actually seen her face to face except nursery, who have honestly expressed their concerns. So I just feel like I am watching her every move and looking for ASD traits! 

My hearts a bit broken, my partner is ever the optimist and I want too be able to feel like this but my minds running away with what this will all mean for the rest of her life 

I think im looking for some reassurance that everything will be ok? Both HV ive spoke to have been amazing, nursery have too, we have a supportive family and I know we are lucky. Its just the unknown.......ive dealt with the battles of SEN. 

Thanks D X

Parents
  • Hi easliy done ,you spend so much energy fighting to get one child sorted out and miss whats going on with the others.  raising my four younger ones has been like that . i find just one battle at a time and homeschooling helps .

  • Thanks Mael, I honestly never thought I'd have to do anybof this again! I should be positive because at least this time I know the score a little bit better, and im older and more confident to challenge people. 

    Just doesn't make it feel any easier yet! 

  • I don't now what your area is like but usually a long waiting list for diagnosis with asd so take things slow ,use the time to prepare and don't be pushed around .knowing how it all works helps .

    We just got our daughter into a specialist deaf school, 1 1/2 year fight with the council,

    The problem with asd is they don't seem to now what to do really, you will find them wishy washy ,it is only if they are violent or very disruptive that they will actually do anything. 

    I have 2 asd daughters and they are brilliant wouldn't change them for anything. 

Reply
  • I don't now what your area is like but usually a long waiting list for diagnosis with asd so take things slow ,use the time to prepare and don't be pushed around .knowing how it all works helps .

    We just got our daughter into a specialist deaf school, 1 1/2 year fight with the council,

    The problem with asd is they don't seem to now what to do really, you will find them wishy washy ,it is only if they are violent or very disruptive that they will actually do anything. 

    I have 2 asd daughters and they are brilliant wouldn't change them for anything. 

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