Mum looking for support

I'm mum to a 5 year old boy, today he's not autistic (this is my rediculous way of thinking thats getting me through ) but on Tuesday I'm having a post assessment meeting with his assessment team and I fully expect him to be diagnosed as they've all but said already.

I was looking around online to see if there are any local support groups, more for me selfishly at the moment as I feel really conflicted and sad about all this. There are so many different websites though, has anyone had any luck finding local groups of people to chat to about this stuff?

Parents
  • Hi moon mum I have a 4 year old boy in a similar situation he was on the waiting list for a diagnosis but now it’s all been put on hold. I felt the same as you but it does get easier yeah I still have my off days when things are hard but i just think it’s who they are sometimes we put all there habits down to autism but many it’s just there personalities aswell. It does help to talk family or friends maybe? Just keep telling yourself it does get easier I promise 

  • Thanks it's good to hear things get better. I'm definitely guilty of agonising over whether each problem is asd related or just cos he's 5!

    The friends and family thing is tricky, because (and I know this is my problem really not theirs) but I never like people's reactions, I don't like hearing 'yes I thought there was something strange about your child' because then I get defensive but on the other hand I hate it when they say 'I don't think he has that, he's just young' because clearly the medical professionals know what they're doing and we haven't gone through all this just because I fancied a label for him.

    Im a bit prickly about it I guess

Reply
  • Thanks it's good to hear things get better. I'm definitely guilty of agonising over whether each problem is asd related or just cos he's 5!

    The friends and family thing is tricky, because (and I know this is my problem really not theirs) but I never like people's reactions, I don't like hearing 'yes I thought there was something strange about your child' because then I get defensive but on the other hand I hate it when they say 'I don't think he has that, he's just young' because clearly the medical professionals know what they're doing and we haven't gone through all this just because I fancied a label for him.

    Im a bit prickly about it I guess

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