Published on 12, July, 2020
My brother is nonverbal, lives in residential care and his behaviour is, and has always been, very challenging. I'd love to meet other siblings with similar experiences but I don't know how to find them. There seem to be lots of threads about Asperger's syndrome but very few about classic/severe/Kanner's autism. Conversations about school, work and friendships usually just make me sad, because they're things he'll never be able to experience.
NAS65946 said:My brother is nonverbal, lives in residential care and his behaviour is, and has always been, very challenging. I'd love to meet other siblings with similar experiences but I don't know how to find them. There seem to be lots of threads about Asperger's syndrome but very few about classic/severe/Kanner's autism. Conversations about school, work and friendships usually just make me sad, because they're things he'll never be able to experience.
Be careful not to miss your actual brother's character whilst your missing him not sharing in your aspirations perhaps. If you consider more what your brother's aspirations and inclinations really are, and you are not adverse to using Facebook or even have an account, there is a Facebook Group going by the name of 'Support Group for Siblings of Autism and Special Needs' ~ whose membership numbers some 500 odd that you may very well find a great deal in common with, and this is their link:
www.facebook.com/.../
There is also a fair number of other links if you do a copy and paste and search engine job with the bold text above, if that helps any?
And of course ~ don't be a stranger! :-)
Thanks for trying to help, but your first two sentences suggest that your experience is very different to mine. My brother's "aspirations and inclinations" are to stay in bed all day and bite anyone who comes near. My family and I have done and are still doing absolutely everything possible to care for and support him. Right now I'm just looking to connect with someone who gets it.
NAS65946 said:Thanks for trying to help,
NAS65946 said:but your first two sentences suggest that your experience is very different to mine.
NAS65946 said:My brother's "aspirations and inclinations" are to stay in bed all day and bite anyone who comes near.
Your brother's 'spiritual' aspiration to stay in bed is in order to recover from the exhaustion and pain of constantly being in the freeze, flight and fight reflex (which involves what is referred to as Autistic Exhaustion or Autistic Burnout), and his 'animal' inclination for defensively or aggressively biting people due to however many getting him to engage in neurologically typical activities without his consent, and before he was ready ~ involves the wounded animal tendency to bite.
NAS65946 said:My family and I have done and are still doing absolutely everything possible to care for and support him.
Regena-Mod said:The myth that autism is a condition with only negative connotations continues and we need to break these myths down.
https://community.autism.org.uk/f/miscellaneous-and-chat/8174/sorry
NAS65946 said:Right now I'm just looking to connect with someone who gets it.