Seeking support and tips from other parents of academic Aspergers child

Hi

My son is in his second term at an all boys selective secondary school and the school very quickly identified him as likely Aspergers and ADD. He was overwhelmed in his first term and lost almost every one of his belongings!  He also couldn't find his way around the school or organise his books/homework.  He also confessed about three weeks in that he found the social side of school very difficult and was extremely distressed about how isolated he felt.

The school is giving him some good support (one-to-one study sessions, a friendship group and 3 sessions a term with the clinical pscyhologist) but he is in a state of confusion and upset about his inability to make friends.  At his primary school (where he grew up with his classmates) he was popular and his friends had great affection for him.  He did of course get teased and was hypersensitive, but on the whole he managed.  At home it was a different story; very challenging as he was so oppositional about very basic things like brushing his teeth, eating his meals etc.   I did seek help several times from his primary school, but as he was doing so well academically, they didn't see him as needing extra support.  

The lack of professional support has taken an enormous toll on our family.  There is often tension in our household as my husband is lacking in empathy about our son's difficulties (though he tries to be supportive) and I am extremely over-emotional and hypersensitive about his needs.  I suffer from severe Anxiety and Depression which is instantly triggered when my son is suffering.  (I suspect there may be some spectrum behaviours here too).  My brother and father were both Aspergers.

I think, with the support he's now getting, my son will begin to work out how to fit in better.  He is quite aware of different psychologies (even though he's obviously missing the social cues) and will eventually learn some of the rules, but it's clearly going to be a painful journey along the way.  I am concerned about my own mental health in this and my inability to cope wtih his pain.  I had a terrible, lonely time at school myself, as did my brother who was completely isolated throughout his 20s and 30s (though now happily married).  When I over-empathise/over-analyse and my depression/anxiety kicks in, this then causes strain in my marriage.  We are trapped in a pretty unhealthy pattern!

I would be so grateful to hear from other parents who've experienced similar things.  I would be particularly grateful for tips about where to get support and how to explain things to my son in a way that will help him move forward.  At the moment - without an official diagnosis yet - we're talking in terms of being 'differently wired' and 'not neurotypical'.  We're also emphasising all the ways in which my son is AMAZING (he really is!) and how creative and unique his thinking is.  He also has a great sense of humour and a real flair for comedy so I have no doubt this 'difference' will be his superpower some day.  It's just getting to that point without any of us having a BREAKDOWN!

I look forward to 'speaking' to some of you.

  • Hi

    If you do manage to get an official diagnosis this could be really positive and provide some concrete suggestions for how to accentuate the positives and face challenges.

    One thing I've had to constantly remind myself of since my 15 year old daughter was diagnosed last year is the power of under-reacting when her anxiety peaks or she faces other problems. No matter how upset I feel, I logically remind myself to take a step back and rationalise the situation. This has really helped her and me - I use the Calm app every day to support this.

    A book which you may find useful is 'Living Well on the Spectrum' by Valerie L Gaus, it contains lots of resources which break down the different aspects of challenges which people on the spectrum may encounter and allows them to consider the pros and cons of a range of responses / solutions in a practical, logical way. Perhaps working together on this as a family may help your husband to feel that he can be more supportive? My daughter responds well to this.

    My daughter was having regular sessions with the school counsellor and on / off with psychologists and psychiatrists but now usually finds that check-ins with her Head of Year and long chats with me about things she's enjoying or what's worrying her are more helpful.

    Best of luck with your journey. Hang in there, you will find the light at the end of the tunnel!

  • Thanks Chloe.  I left a message this morning and look forward to chatting to someone. 

  • Hi ,

    I'm so sorry to hear that your son has been struggling socially at school and the toll that this has taken on yourself and your family. Thank you for sharing this with us.

    You may like to contact our Parent to Parent service who offers emotional support to parents and carers of children or adults with autism. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism . 

    You contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/services/helplines/parent-to-parent/enquiry.aspx

    I hope this help you in some way,

    ChloeMod.