My 7 year old was diagnosed asd last week, any advice appreciated

Hey

My son was diagnosed last week after a really long fight for help and support. I'm pleased he's diagnosed after all the fighting, waiting etc but at the same time I'm unsure what to do now?

They said they won't need to see him again, they said I need to find some support myself. I've looked into a course in my local area for children on the spectrum to try and help me understand how he sees things etc but I would appreciate any help from anyone. 

A few people have also recommended I put in a claim for DLA can anyone shed some light on this?

Any help greatly appreciated 

Thank you 

Parents
  • Hi! My 2 nearly 3 year old daughter was diagnosed autistic in August, I’m also autistic myself. 
    I imagine that after all the effort to get a diagnosis, it now feels a little like you have no clear directions as to where to go from here?

    I did attend a course for parents of autistic children, run by the local specialist pre-school teachers. It was useful in terms of explaining various strategies to use etc. If I’m honest though, the vast majority of the support that I’ve had with coming to terms with my daughters diagnosis has been from my autistic friends who both accept and ‘get’ it. 
    Keep using the forum, hopefully you can find some helpful understanding here Slight smile

  • Thank you so much!!! I knew it was coming, he had all the signs etc the fight for help and answers is so long I thought I was never going to get to the end. I've put myself forward for a course to help parents with asd children so hopefully that will help. Ultimately nothing has changed because he's been this way from a young age but he's getting worse and I'm never quite sure I'm doing the right thing. Sometimes I tell him off then feel terrible because he hasn't understood something. It's a whirlwind and I find it hard to admit that I don't understand my own child Pensive 

  • I have heard that it can be difficult to get a diagnosis. My youngest was put through for ASD assessment quite quickly as she is ‘high needs’, she has been under a paediatrician and various other professionals since she was less than one year old due to also having global developmental delay. As soon as her paediatrician learned of my autism diagnosis at the end of last year and I requested that she be assessed too, he immediately referred her.

    Regarding DLA I also claim this for my youngest. I believe that has already provided the link to the form. 
    In what way us your son ‘getting worse’? It might be difficult to separate what behaviour is normal childhood testing of boundaries and what is due to autism? It’s difficult to not understand your own child, I have this with my middle daughter who is the one of my 3 who is definitely not autistic, I tend to let my husband deal with her more. 

  • He's already on an IEP plan and when the educational psychologist visits him again in May, depending on progress they will decide whether an EHC is needed or not. I've had so many doors slammed in my face along this journey I don't hold alot of hope. I'm going to speak to the gp next week and see if there is anything he suggests for his sleep because I'm dead most days. It's not good for him either because it has started affecting his school work. He doesn't have good focus anyway but with sleep deprivation it is undoubtedly worse! 

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  • He's already on an IEP plan and when the educational psychologist visits him again in May, depending on progress they will decide whether an EHC is needed or not. I've had so many doors slammed in my face along this journey I don't hold alot of hope. I'm going to speak to the gp next week and see if there is anything he suggests for his sleep because I'm dead most days. It's not good for him either because it has started affecting his school work. He doesn't have good focus anyway but with sleep deprivation it is undoubtedly worse! 

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