My 7 year old was diagnosed asd last week, any advice appreciated

Hey

My son was diagnosed last week after a really long fight for help and support. I'm pleased he's diagnosed after all the fighting, waiting etc but at the same time I'm unsure what to do now?

They said they won't need to see him again, they said I need to find some support myself. I've looked into a course in my local area for children on the spectrum to try and help me understand how he sees things etc but I would appreciate any help from anyone. 

A few people have also recommended I put in a claim for DLA can anyone shed some light on this?

Any help greatly appreciated 

Thank you 

Parents
  • Hi! My 2 nearly 3 year old daughter was diagnosed autistic in August, I’m also autistic myself. 
    I imagine that after all the effort to get a diagnosis, it now feels a little like you have no clear directions as to where to go from here?

    I did attend a course for parents of autistic children, run by the local specialist pre-school teachers. It was useful in terms of explaining various strategies to use etc. If I’m honest though, the vast majority of the support that I’ve had with coming to terms with my daughters diagnosis has been from my autistic friends who both accept and ‘get’ it. 
    Keep using the forum, hopefully you can find some helpful understanding here Slight smile

Reply
  • Hi! My 2 nearly 3 year old daughter was diagnosed autistic in August, I’m also autistic myself. 
    I imagine that after all the effort to get a diagnosis, it now feels a little like you have no clear directions as to where to go from here?

    I did attend a course for parents of autistic children, run by the local specialist pre-school teachers. It was useful in terms of explaining various strategies to use etc. If I’m honest though, the vast majority of the support that I’ve had with coming to terms with my daughters diagnosis has been from my autistic friends who both accept and ‘get’ it. 
    Keep using the forum, hopefully you can find some helpful understanding here Slight smile

Children
  • Thank you so much!!! I knew it was coming, he had all the signs etc the fight for help and answers is so long I thought I was never going to get to the end. I've put myself forward for a course to help parents with asd children so hopefully that will help. Ultimately nothing has changed because he's been this way from a young age but he's getting worse and I'm never quite sure I'm doing the right thing. Sometimes I tell him off then feel terrible because he hasn't understood something. It's a whirlwind and I find it hard to admit that I don't understand my own child Pensive