• Replies 15 replies
  • Subscribers 68 subscribers
  • Views 4879 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

My 7 year old was diagnosed asd last week, any advice appreciated

NAS65102

Hey

My son was diagnosed last week after a really long fight for help and support. I'm pleased he's diagnosed after all the fighting, waiting etc but at the same time I'm unsure what to do now?

They said they won't need to see him again, they said I need to find some support myself. I've looked into a course in my local area for children on the spectrum to try and help me understand how he sees things etc but I would appreciate any help from anyone. 

A few people have also recommended I put in a claim for DLA can anyone shed some light on this?

Any help greatly appreciated 

Thank you 

Parents

  • Hi! My 2 nearly 3 year old daughter was diagnosed autistic in August, I’m also autistic myself. 
    I imagine that after all the effort to get a diagnosis, it now feels a little like you have no clear directions as to where to go from here?

    I did attend a course for parents of autistic children, run by the local specialist pre-school teachers. It was useful in terms of explaining various strategies to use etc. If I’m honest though, the vast majority of the support that I’ve had with coming to terms with my daughters diagnosis has been from my autistic friends who both accept and ‘get’ it. 
    Keep using the forum, hopefully you can find some helpful understanding here Slight smile

  • in reply to Kitsune

    Thank you so much!!! I knew it was coming, he had all the signs etc the fight for help and answers is so long I thought I was never going to get to the end. I've put myself forward for a course to help parents with asd children so hopefully that will help. Ultimately nothing has changed because he's been this way from a young age but he's getting worse and I'm never quite sure I'm doing the right thing. Sometimes I tell him off then feel terrible because he hasn't understood something. It's a whirlwind and I find it hard to admit that I don't understand my own child Pensive 

  • in reply to NAS65102

    Please do not beat yourself up  . There is no right thing  . Trust your instincts and remember that you know your child better than anyone else.  I am autistic as well as my son and I have done a few courses but you still just take each situation as it arises. Even if you do find a strategy that works it will only work for a while and then you will need to find something new. 

    Patience in abundance and compassion are the most important tools .

  • in reply to Magnolia1

    I've definitely learnt to be more patient!!! That's a massive thing for bringing up a child with needs for sure. I have also noticed that provisions work for about six weeks then needs changing. I don't think  his teacher will cope with him much longer. His positivity is wearing very thin now.  I have two courses in the pipeline but the waiting list is probably massive 

Reply
  • in reply to Magnolia1

    I've definitely learnt to be more patient!!! That's a massive thing for bringing up a child with needs for sure. I have also noticed that provisions work for about six weeks then needs changing. I don't think  his teacher will cope with him much longer. His positivity is wearing very thin now.  I have two courses in the pipeline but the waiting list is probably massive 

Children
No Data