When to tell younger daughter about older sister's AS

Hi all

At what age should we tell our younger daughter (who is 6 and neurotypical) that her older sister (who is nearly 14) has Asperger's?

We are having big upsets between the two of them at the moment.

The older one (call her 'Alice') was diagnosed with mild AS about 5 years ago. She is very intelligent, top classes at school, but has no empathy and her speech can often sound aggresive or antagonistic.

As a consequence, our younger daughter (call her 'Harriet'), who is extremely empathic and emotional, can become very upset at the way that Alice talks to her.

It isn't helping now that Alice has taken to trying to 'protect' her sister by parroting the things that we, as parents, say, such as: "don't fall over" or "pick that thing up that you left on the floor so nobody steps on it". But from Alice they just sound like angry orders!

This, of course, upsets Harriet, who wonders why she is being shouted at. Cue the tears and wailing.
Which in turn upsets Alice, who can't understand Harriet's reaction.

My wife then usually tries to calm Harriet down, whilst I try to explain her reaction to Alice.

The whole problem is compounded by Alice's utter refusal to believe that there is even such as thing as Asperger's Syndrome, let alone that she might have it.
This means we can't talk to her about how people react to her voice. Or about anything she does that might upset people (usually it's just us at home, as she is 'on her best behaviour' at school, but doesn't have to be at home - by her own admission.) We end up just managing the fallout.

Do any of you out there have an opinion about whether now would be the right time to let Harriet (the 6 year old) know that her sister is 'different', and explain to her about AS?
She is very intelligent, and would almost certainly accept without any worries at all (particularly since we've been avidly watching the Paralympics and she is very understanding about the many ways people can be 'different').

We just want Harriet to not be upset by her older sister. We can see her confidence starting to be knocked...

Any help or advice would be welcome!

Parents
  • Hello MikeyGee

    Thanks for replying.....I can see you are dealing with a difficult situation!  Probably your 14-year old's behaviour is very typical of most teenagers (especially girls - I  remember going through that stage myself). Although my own kids are not teenagers yet, I was one of six kids, and I have seen a fair bit of family life!

    It sounds like you are trying your best with your 14-year old......the only other piece of advice which comes to mind is the 'TRIPLE P' PROGRAMME.  I have recently completed this parenting programme, and would have to say I highly recommend it.  It in no way down-grades you as a parent, in fact it makes you feel like an extra special parent because you care about the way you bring up your child.  They do a special course for parents of teenage kids too......they would definately have some hints and tips about dealing with that 'I know best' attitude in teenagers.

    I was very sceptical about such a course, but having completed the 5 week programme, I can honestly say you come away with the extra 'tools' for the job....after all, parenting is the most challenging thing in the world (but also the most rewarding)!!  And for those of us with kids who have extra needs, we are somehow given the extra patience needed to get through each day.

    If you are interested in this course, I suggest you speak to your younger child's school - that was where I got the lead from.  Not sure what is available in your area, there may be something very similar.  Alternatively, I could perhaps give you the contact details for the ladies who ran the course I attended (not sure if this would pass the Mod though!!!)

    Good luck!

Reply
  • Hello MikeyGee

    Thanks for replying.....I can see you are dealing with a difficult situation!  Probably your 14-year old's behaviour is very typical of most teenagers (especially girls - I  remember going through that stage myself). Although my own kids are not teenagers yet, I was one of six kids, and I have seen a fair bit of family life!

    It sounds like you are trying your best with your 14-year old......the only other piece of advice which comes to mind is the 'TRIPLE P' PROGRAMME.  I have recently completed this parenting programme, and would have to say I highly recommend it.  It in no way down-grades you as a parent, in fact it makes you feel like an extra special parent because you care about the way you bring up your child.  They do a special course for parents of teenage kids too......they would definately have some hints and tips about dealing with that 'I know best' attitude in teenagers.

    I was very sceptical about such a course, but having completed the 5 week programme, I can honestly say you come away with the extra 'tools' for the job....after all, parenting is the most challenging thing in the world (but also the most rewarding)!!  And for those of us with kids who have extra needs, we are somehow given the extra patience needed to get through each day.

    If you are interested in this course, I suggest you speak to your younger child's school - that was where I got the lead from.  Not sure what is available in your area, there may be something very similar.  Alternatively, I could perhaps give you the contact details for the ladies who ran the course I attended (not sure if this would pass the Mod though!!!)

    Good luck!

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