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some questions about stress

star2717

Hi everyone,

I'm looking for some information and would be really grateful if you could help.

I teach in a complex learning needs primary school and am currently studying for a postgraduate certificate in Autism.

I am researching how stress affects parents of children with Autism, what support is available to parents and what effect this support has. I'm hoping to use this research to set up a parent information and support group in the school.

I'd really like to know what parents find to be the most stressful issues, how you cope with these issues and if there is support available, what is the most useful form of support?

Thank you in advance for taking the time to reply to this post.

Parents

  • Hi Bananas.

    My son is 11, with 1 more year to go until High school. We don't have a lot of choice, re schools, as we're in a rural community. They are much, much better then they used to be re his behaviour (had 3 exclusions 2 years ago - we had to appeal & won), but if he's going through a bad patch, you still dread the phone ringing and get that horrible sinking, sick feeling you described.

    We're lucky that we have an excellent spectrum support worker who my son gets on with well and who has supported us as parents in meetings etc. It's that need to not be the lone voice for your child and she made us feel that it wasn't our fault and that we weren't going mad and barking up the wrong tree with a horrible, undisciplined child! So now much more has been put in place for him at school and they are generally better at seeing what's behind his reactions to a situation.

    I agree about the job stress. I've been very fortunate too in that the 2 jobs I've been in over the last few years have both been very understanding about having to suddenly attend meetings or take a day off. It must be said though, that it is due to my son's Aspergers that my husband and I now only work just over 1 full time job between us, so that bar 1 day a week, there is always someone at home just in case. Our family income has plumetted, which obviously has an effect on all of us (we have 3 kids). I guess this is where DLA partly comes in...

    Good to exchange thoughts!

    Hellsbells

Reply

  • Hi Bananas.

    My son is 11, with 1 more year to go until High school. We don't have a lot of choice, re schools, as we're in a rural community. They are much, much better then they used to be re his behaviour (had 3 exclusions 2 years ago - we had to appeal & won), but if he's going through a bad patch, you still dread the phone ringing and get that horrible sinking, sick feeling you described.

    We're lucky that we have an excellent spectrum support worker who my son gets on with well and who has supported us as parents in meetings etc. It's that need to not be the lone voice for your child and she made us feel that it wasn't our fault and that we weren't going mad and barking up the wrong tree with a horrible, undisciplined child! So now much more has been put in place for him at school and they are generally better at seeing what's behind his reactions to a situation.

    I agree about the job stress. I've been very fortunate too in that the 2 jobs I've been in over the last few years have both been very understanding about having to suddenly attend meetings or take a day off. It must be said though, that it is due to my son's Aspergers that my husband and I now only work just over 1 full time job between us, so that bar 1 day a week, there is always someone at home just in case. Our family income has plumetted, which obviously has an effect on all of us (we have 3 kids). I guess this is where DLA partly comes in...

    Good to exchange thoughts!

    Hellsbells

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