I've posted before and I'm trying to do all the right thingsI. I have a 10-year-old who is on the way to being diagnosed. She spends every single day in her bedroom.she swears at me she won't wash her neck is absolutely dirty her hair is filthy she argues all the time. She will only eat what she wants to eat and chucks her food on the floor.
I went to social services for some help because she was attacking me when I was trying to get her to go to sleep without her phone or computer and they said to give it her for now. This is because of the violence towards me.I don't really see as a single parent going through a divorce from a controlling ex partner in the middle of a divorce how I can cope. No matter what I try with her she works against it.
I don't have a support system as I've been in a controlling marriage for 15 years.I'm now having to go through the courts to keep her father away from her because he threatened to kill himself in front of her 3 weeks ago and the police have been involved.l have a molestation order.
and I'm left dealing with her daily with no help even though I've asked for help from social services I've got cams involved and they have come round and when they visited she's been all lovely and everything and they've said all yes you're doing the right thing don't wworry.They said we won't get involved because we don't want to label her.you're doing the right thing with the diagnosis because we believe there some autistic traits there.
I think I'm very depressed because I've been in an abusive relationship for so long and I I'm thinking that maybe in 6 months time if I'm still in the same situation if I haven't gone completely mad and she's just going to have to go into care. That makes me sound like the mos un caring mother ever but what choice do I have to do when I have a child that won't leave her room chucks food around his violent won't listen to me.argues all the time is abusive to me and I can't seem to turn the control around. Im doing all the right things so that she'll listen to me and we can move forward with our lives.
I've been told that it could take up to 2 years for her to be diagnosed. The way things are going with the house and my life at the moment I can't see me be here in 2 years time if it carries on like this.
I'm so lonely and just being pushed from Piller to post by the NHS and doctor. The doctors is at the top of the road and they won't come and see her. She won't go out.
I'm in Derbyshire and lv just about had enough.
Sorry to hear that you are going through such a horrible time at the moment. You certainly have a lot to deal with and it is evident that you not only need additional support but also some respite yourself.
It seems that you are coping the best way that you can and that your children are processing such a challenging situation in their own way - both parties confused, hurt and uncertain about what the future may hold. Has your child always behaved this way or is that an increasingly deteriorating situation due to the fallout from your abusive relationship?
Do you have any family or friends that can support you? Being a single parent can feel highly isolating as it is, let alone with a wealth of issues to deal with at your doorstep. As a mum people can often assume that we innately have all the answers and all the skillset needed so just need to "get on with it" - reality is not often like that.... and most importantly, there is no shame in that and please don't give up flagging up the support you need to outside agencies!!!
Please don't think you may lose your children. Have you reached out to NAS and their phone line, or MIND or other such agencies? Have you spoken to your child's school and their SENCO department?
I’m not the parent of an autistic child, so I can’t give you first hand advice, but NAS does offer a parent to parent service which you can find here. The NAS helpline can be found here.Child Autism UK also have a helpline, you can find it here. There is a Facebook page ‘Autism Moms Support Group’ that can be found here, it’s based in the U.S.A. but has an international reach, you may get some helpful tips. Below are another couple of organisations that may be able to help you. You are obviously a good Mother, it can be very difficult when children exhibit such challenging behaviour. All the best, Graham.
Thanks for your reply Ellie.
She has always found socializing difficult and has been through six schools. At school shes always finding reasons why people do not like her . Always on the edge of the group and has always ended up making friends with the people who then go on to bully her whilst the mums and the kids who want to be her friends are ignored.My attempts to do the right thing are always wrong. In one school she was happy and that was a small private school where there were only about 6 girls in the whole year. I thought that was it but then my husband pulled the plug on it although they bought the fees down to almost nothing and it broke her heart when she left. But she was getting to the same point on not wanting to go in a bit at that school as well.
She never crawled and straight to walking The lack of eye contact has become worse over the years. she has always been off with me from about the age of six and oppositional but that might be the environment.
More recently things have gotten worse. she constantly moves one part of her body and finds it hard to be cuddled. She wont go out which is driving me mad as I have towait until one trusted neighbour can look after her if I need to take a journey further than round the corner for some milk.
her father was very abusive to me it was like living in one of those domes. Everyones on the outside having a life and your in their with someone who changes from a barrister, to holier than thou, to raging and then being a victim. he would flip constantly and in the end I could hardly speak to him as I couldn't cope with him being so horrible and then laughing at me or ignoring me or putting me down infront of our daughter.
I took myself to see a psychologist a year ago as I couldn't take any more and wondered what on earth was wrong with me. I then learnt about narcissism and personality disorders and so on.
On the 15th of last month he did something that shocked me and has really made my daughter a lot worse. He had her at his house and told her he was going to kill himself and it was her fault and she had ruined his life. He then shut her in her room and said when she came out he would be dead and everyone would blame her. he then drove her home. She told me he did this in a fast and wiggly manner and it scared her. She said he said he was going to kill them both and if she lived everyone would blame her.
he then turned up at my house with her at 11pm. She came in upset and I told him to go as I would call the police. he did
So I calmed her and she told me what had gone on and I called the police ands services.
Since then shes been to school once and out once but now she wont. I have doctors surgery at the top of my road and they wont home visit. She is on a waiting list for assessment for autism but I have been told that it could take two years.
Social services have not helped and are now on Christmas break. The FRiday before Christmas CAMS came out as I had told them about her getting worse. They spoke to her on her own and then spoke to me. They said Im coping well and doing all the right things. They said that if I am making a hot chocolate I should offer her one ( as if I leave her up there and don't bother..really).
They are not bothered about her not being clean or hair filthy. Thay said that they would be looking to get her phased back into school and they would kick s services up the behind. I was told to see how 2019 goes..
so no counselling for whats happened with Dad to help her get back to school. She has always had issues about sleeping but we managed. But now I have an nocturnal child. If try and take her pc away or phone I get hit. She follows me downstairs and pushes me around.The last time she put her shoes on to kick me harder.
because we have moved so much..so I could not get settled and make friends I don't have a lot of friends. I have a lovely friend who comes round and looks after her when I was at court for the molestation order and she pops in for tea when she can. she has been giving me advice about getting the balance back as my daughter is copying some of her Dads mannerisms
Another friend has been helpful but has her own issues to deal with.
Iv been told by my daughters teacher that she has traits and behaviours other children on the spectrum have. Also that shes bright. She has written of for a referral as well. They have a high number of children on the spectrum at the school but are not a specialist school ans of course are struggling with money. They are the most helpful one so far. But I cant get her there. her school have a senco lined up and a school psychologist but if I cannot get her there then what do I do. shes missed most of this last half term and most of the half term before that.
I am worn down I think. I need to get the balance that I am in charge across to her and the event of the 15h has made things worse. I will get back to the NUS for there peer help.
I think what gets me the most is the lack of help.
I know Im going to have to go through the house being smashed up before I can get her to school as that will be her response when I turn the internet off. Social services told me to let her have her phone or pc if it meant I didn't get hurt and could sleep.
But to me its like Maslow and the dog- psychology. You are training her to use the pc as a safety blanket. At least whenit was books she would fall asleep.
Im absolutely shattered and shes in bed after being up all night and its like groundhog day. Why does
everyone understands apart from the people who should be helping but don't and patrionise me.
Sorry about the spelling and so on, Im just very tired.
No need to apologise for being tired. The first and foremost thing is for both you are your daughter to get support. You have both been through hell and you need some stable time, time to feel able to gather strength and move forward. Time also, to rebond and regroup yourselves and your relationships with each other.
It is a shame that Social Workers etc take time off during xmas as this can be certainly a fit pit in terms of raging angst, family trauma etc etc ..... You need a big hug and much more than that besides.
Is there ANYONE you can reach out to... family, friend, neighbour. This is a good community and will help also.
Im spoke to the support line here today and they gave me an idea. To write to my daughter instead of trying to talk. I need to get across to her that we are a team now and that we can go forward, that I love her very much and Im very sorry about Daddy. The thing is I don't want to communicate the wrong way.
I just don't have that support network. After we left London we constantly moved around and I lost friends details or it was too far and they moved and so on. My mum diedand my family are not close. It never bothered me before this all happened as I love meeting people and volunteering and so on. But it sometimes feels like Iv had the rug pulled from under me. Also I cannot go anywhere at the moment
Im trying to make her come down for every meal from
yesterday onwards. And tonight a small flannel wash.
If anyone has any tips on getting her motivated and getting her attention away from computers that would be great. I make a point of telling her I love her and none of it is her fault. She does talk on and on about computer games though. If she where a boy Im sure it would be Pokémon. She used to go on and on about books to the point that other people would just stare.
It is really isolating when you cant get out.
I have come across Autism Moms Support Group. I will try Child Autism Uk as well.
Im just so tired and it just seems never ending sometimes.
And for parents with severely Autistic children well that must be even harder.
If your daughter is into computer stuff. Maybe find a forum where she can discuss this with like minded people. This group may be worth trying: https://www.ambitiousaboutautism.org.uk
I have not discussed it with her at the moment due to her fragile state.
I will have a think about that one.
Hello,I am a single mum ,been through the hell of trying to do the 'right thing' regarding internet access,washing ,food...I know some folk in my life felt I was being 'irresponsible,neglectful...' when I decided the best thing to do was offer 24hr internet access,not make any 'fuss' about washing,give in to 'strange ' food requests...(It is a temporary measure-in my experience it does get better-my daughter was unable to describe what was going on her mind-so many things were causing extreme anxiety ,for me to take away her lifeline(Computer) was distressing,the bathroom light too bright...-so often she was experiencing sensory overload but could not express this(I had no idea back then but so much makes sense now),she felt 'different 'confused,frightened.I went through a period of 'talking' to my daughter using a notepad-it helped!,The past couple of years have been tough!(My daughter experiences suicidal ideation,self harm,anxiety,panic... but my daughter now has a diagnosis -upon reflection there has been exceptionally tough and challenging periods when I felt like I would lose my mind .(The 'rambling about special interests-my daughter is now aware of this and is able to respond well when I say 'okay,we can talk some more about that later..hint hint!!! )My daughter has stopped going to school-she is now a teenager-it is what it is ,her well being needs to be attened to.It is like you have to go against the 'norms' of what is deemed to be 'good' parenting-let them stay up,stay dirty ,don't leave the room,don;t go to school-(My social life mainly consists of a walk to local convenience store-woohoo!However,my connection with my daughter feels strengthened-we are getting to know each other again.Xxx
Hi, I’m sorry to hear that you’re going through what sounds like an extremely complex situation. There’s quite a lot of factors here so I’m going to try to address one at a time.
Firstly, there’s you. You’re trying to recover from an extremely abusive relationship and deal with ongoing leftover issues from that. On top of that you’re also having to deal with a daughter who, regardless of the reason, is behaving in an extremely abusive way towards you. You also mention that you don’t have a support network. I think it might be wise for you to see your GP to discuss your situation as they maybe able to help you or refer you on to someone who can. If you get to the point where you have had enough and you are at risk of harming yourself then please contact the 24/7 mental health crisis team who will assess you ASAP. There are also services such as the Samaritans that you can phone to talk to, just to sound off if you need to do that. Sorry I don’t mean to seem condescending at all, I just think it’s important that your needs are addressed as well as those of your daughter
Secondly, waiting for a diagnosis is frustrating in any circumstances, I suspect it is more frustrating for you as it’s a hurdle that you need to get past before you can access certain services and support for your daughter and yourself. Your GP would know which assessment centre she has been referred to for assessment, why not ask your GP for the number then you could call the centre direct to find out where she is on the waiting list and how long it might take until assessment. It might also help to update the GP about the situation with your daughter and ask them to chase the assessment centre themselves.
Thirdly, your daughter is also traumatised by your ex’s behaviour. I have to say that I’m very disappointed that neither social services or CAMS were prepared to help. Has she been given access to any counselling at all?