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nt partners of autistic/aspergers

some one

ive noticed in the few years ive researched autism/aspergers that tho there is a lot out there about familys, carers and parents of those with autism, not so much goes into the partners of adults with autism

our voice needs to be heard too and i as one of those people feel theres not a lot of options for me, i literally have to deal with it on my own

its a lot of stress and pressure to do the 'right thing' by my partner, when sometimes (a lot actually) that right thing usually means i have to just cope with and go through whatever it is, and try to come out the other side not completely mental

i do my best for my partner, and he does what he can too in his own way, but there are times i just dont know what to do, and times i cant

anyway, there you go, thats my pent up view on it for just now

Parents

  • It is certainly tough out there.  I work with youngsters with autism and asperger's, and I do not, therefore, have the direct personal experience that other contributors here have.  At the same time I was for four and a half years the primary carer for a massively handicapped child for whom, had she lived, I would still be trying to take care of and with whom I would be receiving very little help.  My mother, with vascular dementia, is in a home which she shares with people who have Alzheimer's and, indeed, a few people who have no mental issues at all.

    My observation is that the lack of appropriate support isn't exclusive to autism and asperger's.  Hundreds of thousands of people, perhaps millions in this country alone, have to cope with a lack of support that really ought to be available.  That includes the whole range of genetic, illness and age induced and accident-related disabilities.

    What is lacking is less the money than the will.  As a country we can find money to fight wars, produce spectacular sporting events and pay ridiculous bonuses to people who actually produce nothing, but people still sleep in the shop doorways of our capital.

    I would really like to help.  I am always willing to listen, of course, to anyone who wants to vent or debate,but unless matters have changed here I cannot even offer a contact address other than this forum.

    I'm starting to rant, I think.  I apologise.  I hope people understand my main point at least.

    Warmest best wishes to you,

Reply

  • It is certainly tough out there.  I work with youngsters with autism and asperger's, and I do not, therefore, have the direct personal experience that other contributors here have.  At the same time I was for four and a half years the primary carer for a massively handicapped child for whom, had she lived, I would still be trying to take care of and with whom I would be receiving very little help.  My mother, with vascular dementia, is in a home which she shares with people who have Alzheimer's and, indeed, a few people who have no mental issues at all.

    My observation is that the lack of appropriate support isn't exclusive to autism and asperger's.  Hundreds of thousands of people, perhaps millions in this country alone, have to cope with a lack of support that really ought to be available.  That includes the whole range of genetic, illness and age induced and accident-related disabilities.

    What is lacking is less the money than the will.  As a country we can find money to fight wars, produce spectacular sporting events and pay ridiculous bonuses to people who actually produce nothing, but people still sleep in the shop doorways of our capital.

    I would really like to help.  I am always willing to listen, of course, to anyone who wants to vent or debate,but unless matters have changed here I cannot even offer a contact address other than this forum.

    I'm starting to rant, I think.  I apologise.  I hope people understand my main point at least.

    Warmest best wishes to you,

Children
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