At the End of My Tether

My 15 year old daughter has struggled throughout secondary school but the last year has been a nightmare.  She got to the point where she could not tolerate being in class due to anxiety and sensory overload. She went from going to school fulltime to being on a part time timetable and is now only going into school for 2.5 hours a day which she is spending in learning support.  However, she is not being taught - she sometimes is given some worksheets by a teacher but often she is only doing work we haven given her.  My husband and I are teaching her as best we are able for her June GCSE modules.  The problem is she just can't focus to take much in at the moment.  Had a meeting last week with the SENCO, Autism Advisory Service and CAMHS.  They talked about applying for exceptional needs funding to provide teaching for her in Learning Support for Year 11.  We have just heard this has been refused.  I really don't think the school are going to be able to fund one to one teaching for her, so what is the point of her being there.  The Autism Advisory lady says it is important she keeps going to school as if she doesn't she will just be stuck at home and it will be difficult to get her back out again.  The SENCO is helpful and on our side but I think she is totally out of her depth.  Any ideas would be greatly appreciated. 

Parents
  • Hi,

    I had a similar experience a few years ago when my child was just 8 years old.  His stress levels reached the point where he wouldn't get dressed and developed obsessions which prevented him leaving the house to get to school.  If he went to school, he refused to cooperate or even do simple tasks of which he was well capable.  I do not believe he was being bullied, but he was, like your daughter, experiencing sensory overload. 

    Thankfully, at that time, when we were feeling desperate, we came across the Son-Rise Program.  We read more, spoke to one of their counsellors in the US and subsequently signed up to take a parent-training course with them.  (There were of course a few obstacles we had to overcome to achieve this).  The following year we took him out of school and ran a home-based program for him, with the help of volunteers, who were mainly students, that I recruited.  We made it clear to the LA that our intention was to take him out of school for a time, and later return him to school.

    After a 2-year programme (mostly non-academic), he returned to a new school with smaller class size, without teaching support, and as his confidence has re-grown he has shown himself capable of dealing with pretty much every social situation and enjoying team sports as well as excelling academically. 

    I'm guessing your child is at the higher end of the Spectrum, since you're talking about GCSE modules.  I'm sure that at the age of 15, it's difficult to step away from the expected path that your child will take GCSEs, then maybe A levels and continue with life.  However, the reality is that if your child is not managing school, how well is she likely to manage life beyond school?  I know this is an anxiety of many parents with a child with an ASC, which becomes heightened in the face of pressures to complete public examinations.

    If you are able to, I suggest you stand back from the situation and consider what is most important for your child's life right now.  Is it passing a couple of GCSEs, and undergoing all the attendant stress that will entail?  Or would it be better to remove her from the stress, allow her time to recover and take pro-active steps to help her to deal with some of the challenges that she faces daily? 

    Clearly, everyone's personal situation is different, but if you are able to run an intensive home programme for your daughter, you can help her.  I don't believe it is ever too late.  If she wants/needs GCSEs later, she could do them at evening classes, or by correspondence course or at a Sixth Form college.

    Have you ever tried learning things when you're feeling stressed?  It's well-nigh impossible for most people.  Schools do their best for our children, but their primary remit is to provide education, not to take care of the social and emotional welfare of our special children.

     

Reply
  • Hi,

    I had a similar experience a few years ago when my child was just 8 years old.  His stress levels reached the point where he wouldn't get dressed and developed obsessions which prevented him leaving the house to get to school.  If he went to school, he refused to cooperate or even do simple tasks of which he was well capable.  I do not believe he was being bullied, but he was, like your daughter, experiencing sensory overload. 

    Thankfully, at that time, when we were feeling desperate, we came across the Son-Rise Program.  We read more, spoke to one of their counsellors in the US and subsequently signed up to take a parent-training course with them.  (There were of course a few obstacles we had to overcome to achieve this).  The following year we took him out of school and ran a home-based program for him, with the help of volunteers, who were mainly students, that I recruited.  We made it clear to the LA that our intention was to take him out of school for a time, and later return him to school.

    After a 2-year programme (mostly non-academic), he returned to a new school with smaller class size, without teaching support, and as his confidence has re-grown he has shown himself capable of dealing with pretty much every social situation and enjoying team sports as well as excelling academically. 

    I'm guessing your child is at the higher end of the Spectrum, since you're talking about GCSE modules.  I'm sure that at the age of 15, it's difficult to step away from the expected path that your child will take GCSEs, then maybe A levels and continue with life.  However, the reality is that if your child is not managing school, how well is she likely to manage life beyond school?  I know this is an anxiety of many parents with a child with an ASC, which becomes heightened in the face of pressures to complete public examinations.

    If you are able to, I suggest you stand back from the situation and consider what is most important for your child's life right now.  Is it passing a couple of GCSEs, and undergoing all the attendant stress that will entail?  Or would it be better to remove her from the stress, allow her time to recover and take pro-active steps to help her to deal with some of the challenges that she faces daily? 

    Clearly, everyone's personal situation is different, but if you are able to run an intensive home programme for your daughter, you can help her.  I don't believe it is ever too late.  If she wants/needs GCSEs later, she could do them at evening classes, or by correspondence course or at a Sixth Form college.

    Have you ever tried learning things when you're feeling stressed?  It's well-nigh impossible for most people.  Schools do their best for our children, but their primary remit is to provide education, not to take care of the social and emotional welfare of our special children.

     

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