The famous supportive "autism parents" being a myth to me - for mine are nothing like that

I swear every Twitter and Tumblr ASD page keeps posting and posting about these lot. Cool if this is your parents. But what if it's not?

In fact I feel highly annoyed by so many mentions, how awesome and patient they are supposed to be etc. Well guess what, that's not my parents; I still have to convince my own Parents I have autism at all even after diagnosis!

If I haven't made friends with ASD, who knows how long I would've gone undiagnosed, because it would never cross my family's minds that this childish 20-year-old me might simply have Asperger's, and is not a selfish, despotic, stubborn, arrogant, lazy, narcissist many make me out to be :-( (Yes, all of these words I have been called by relatives!).

Another popular one is claiming that I'm just making yet another excuse, as in the past I always felt I was weird and tried to assign many various conditions to myself, such as Schizophrenia, Psychosis, etc. I was only trying to find out the truth about myself for all these years. Yet they believed all I always did is attempt to get out of doing things. It's really not.

Or of course I heard the classic most of you probably heard, “You're just depressed”. And “everyone has some traits of autism don't they?”. Ughhh sigh.

Even my Mum hasn't been helpful either and once asked me, “Why'd you always try to make yourself look weird when you really aren't?”. How am I not??

Luckily what She told during the phone interview for my diagnosis must have been sufficient, despite Her saying She doesn't remember much and that nothing struck her as unusual and that I was a “cheerful, happy child”. Yet from what I heard from the Diagnosis Team when they confirmed I have Asperger's that there was sufficient evidence of ASD traits in childhood, so perhaps what my Mum somehow saw as nothing odd, it was in reality, strongly suggesting She is simply in denial about Her child.

I mean I remember I could do some basic reading aged 4. I remember the first thing I ever wrote, which was (transliterated from Polish) “No dogz aloud” - the naive fool I was really thought that would defer the dog from coming in! (It didn't, by the way). By 5 my skill was polished up to perfection. I would engage in conversations with every bloody stranger, and when I cited that to Mum as evidence of abnormality, She dismissed it as "cute". O_o I also recall everyone remarked how smart I was, and when I was 6 She actually took me to this place which assessed if the child is fit to go to school early (this was still in Poland) and I actually 'passed' - but didn't want to go myself! And before being tested there were these 2 women, chatting about some nonsense I was totally uninterested in - and this rude child me straight up told them" 'Could you stop talking? I have a headache'. Oh man, if you only saw how horrified my Mum was!! Yet today, She doesn't even remember it, how!! Not mentioning I definitely must've copied that headache phrase from somewhere lol.

As for my Father, just check out the “But you don't have autism” anecdote from my previous posts >,<

So… Yeah… I guess I'm just my classic dismayed and bitter that my Parents are not people I could count on, and the Autism Parent memes just seem like lot of dull, pretentious propaganda setting goals and expectations I know my folks will never reach :-(

Parents
  • I was speaking to my mum over the phone today after my post diagnosis session earlier this week and she said 'I do remember thinking that was not quite normal when you were younger', when talking about my lack of friends, and my sensory issues.

    Having got a diagnosis at 33 having had a lifetime of bullying, depression, anxiety and lots of other things I found this little comfort. It would have had a huge impact on my life if I had found this earlier, instead of having spent years going through psychologists and prescriptions, sedating things, only for them to keep reoccurring.

    That said, people are brought up by other people, and inherit many things from them. There are so many stigma's that come with mental health, and for a lot of older generations, pride, and putting on a brave face are ways of life. Admitting to something, or being diagnosed was seen as a bad thing, just like in previous times when anyone with any sort of mental health issue was hidden away in asylums, out of the public eye.

    I have spent more time educating my family since my diagnosis than anyone else, and I still feel like I do not trust my mother to believe in my diagnosis, as it would be like her admitting she had got things wrong.

    As a parent myself my mission is to learn from my parents, and make sure I do not follow directly in their footsteps, or I will make the same mistakes. Instead I try and take the best of them and leave the worst, and hopefully I can.

    Don't feel that your parents are not conforming, as the propaganda is unrealistic, and their reactions are probably more normal than this image of the perfect supportive parents that is online. In time they may learn more, and be able to help you more, but its important for you to make sure you do the right thing for yourself. Also remember that many times, diagnosed children may find they have undiagnosed family members, which can mean there are sometimes parents who are also unable to deal with many things and actually are struggling as well, but because of how they have been brought up have never considered they may not be NT.

    There are never perfect solutions, but you will always find people to listen here! And if weird is different, then we are all different, so that either makes everyone weird or no one Slight smile (Though I have now confused myself!)

Reply
  • I was speaking to my mum over the phone today after my post diagnosis session earlier this week and she said 'I do remember thinking that was not quite normal when you were younger', when talking about my lack of friends, and my sensory issues.

    Having got a diagnosis at 33 having had a lifetime of bullying, depression, anxiety and lots of other things I found this little comfort. It would have had a huge impact on my life if I had found this earlier, instead of having spent years going through psychologists and prescriptions, sedating things, only for them to keep reoccurring.

    That said, people are brought up by other people, and inherit many things from them. There are so many stigma's that come with mental health, and for a lot of older generations, pride, and putting on a brave face are ways of life. Admitting to something, or being diagnosed was seen as a bad thing, just like in previous times when anyone with any sort of mental health issue was hidden away in asylums, out of the public eye.

    I have spent more time educating my family since my diagnosis than anyone else, and I still feel like I do not trust my mother to believe in my diagnosis, as it would be like her admitting she had got things wrong.

    As a parent myself my mission is to learn from my parents, and make sure I do not follow directly in their footsteps, or I will make the same mistakes. Instead I try and take the best of them and leave the worst, and hopefully I can.

    Don't feel that your parents are not conforming, as the propaganda is unrealistic, and their reactions are probably more normal than this image of the perfect supportive parents that is online. In time they may learn more, and be able to help you more, but its important for you to make sure you do the right thing for yourself. Also remember that many times, diagnosed children may find they have undiagnosed family members, which can mean there are sometimes parents who are also unable to deal with many things and actually are struggling as well, but because of how they have been brought up have never considered they may not be NT.

    There are never perfect solutions, but you will always find people to listen here! And if weird is different, then we are all different, so that either makes everyone weird or no one Slight smile (Though I have now confused myself!)

Children
  • Good advice Daniel....I just try to focus on those that do understand me....which saves a lot of time...as even I don't get me!