Invisable aspbergers?

Imagine the situation. You suffer from Aspbergers and your with a group of people at a support centre. In comes another support worker who is friendly enough, but gives you funny looks because she/he thinks you don't fit the criteria for support; yet you do need support.
It's bad enough when your stared at through narrowed eyes, like their saying 'why does she need help for? There's nothing wrong with her'. But THERE is because it's bad enough feeling like your in a box ...in social situations staring out being judged for what you can and can't do.
Feeling like your not being wanted and feeling embarrassed because you had the courage to admit you had a problem, is not easy. Being made to feel like 'you don't need to be here' when you do is pretty deflating to a condition which is not helped any better by the attitude of 'we can't help you, you just don't fit the bloody bill'.
What do I need to do to prove my autism, it's hard enough trying to get across what I mean. Then people jump the gun and misunderstand what you are talking about, hang on you've got the wrong end of the stick. Do you know or even realise how frustrating it is trying to get people even understand autism in adults? Would you rather we all end up in asylums like back in the 19th century?
A bit of compassion would be nice, surprisingly even some Dr's from the older generation fail to recognise metal health or Aspbergers. Please be patient with adults with Aspbergers, don't get annoyed or impatient. If you do then your in the wrong profession, maybe retail or extra training would suit you better?

Parents
  • I actually understand and feel sympathetic towards what you feel, because I have had some similar experiences.

    After a lifetime of problems with not getting along with people.  I have had a lot of time and practice at developing coping strategies which means I can fool many people that I am NT, up to a point.  But eventually my acting breaks down and people start shunning me because they consider me strange.

    Most of my problems are dealing with people and socialising.  I say inappropriate things, sometimes I am am self aware at other times I haven't a clue why people get upset.

    I have received help at various times with various problems and like you, sometimes the people in charge give me funny looks and eventually ask me to leave.  Yet in reality I need help even more than the other people in that group.

    Like you, I am also an enthusiastic photographer and I am still actively learning and getting better.  I find photography very relaxing.

    Do I have aspergers syndrome ?  I don't know? First time I heard about it was my mental health team discussing it after my last suicide attempt.  I thought, rubbish! I don't shout abuse at people. I confused it with tourettes syndrome.

    The important point here is, do the general public have any idea what aspergers syndrome is ?

    As for not fitting in.  That is the story of my life.

    I was twice asked to leave training courses because i didn't fit in with the rest of the trainees. 

    I always had problems at school and in employment because I don't fit in.

    Now, I am having difficulty signing on universal credit, because I hate visiting the job centre and I can barely cope with being near the other people there.

    Sorry for the rant.

Reply
  • I actually understand and feel sympathetic towards what you feel, because I have had some similar experiences.

    After a lifetime of problems with not getting along with people.  I have had a lot of time and practice at developing coping strategies which means I can fool many people that I am NT, up to a point.  But eventually my acting breaks down and people start shunning me because they consider me strange.

    Most of my problems are dealing with people and socialising.  I say inappropriate things, sometimes I am am self aware at other times I haven't a clue why people get upset.

    I have received help at various times with various problems and like you, sometimes the people in charge give me funny looks and eventually ask me to leave.  Yet in reality I need help even more than the other people in that group.

    Like you, I am also an enthusiastic photographer and I am still actively learning and getting better.  I find photography very relaxing.

    Do I have aspergers syndrome ?  I don't know? First time I heard about it was my mental health team discussing it after my last suicide attempt.  I thought, rubbish! I don't shout abuse at people. I confused it with tourettes syndrome.

    The important point here is, do the general public have any idea what aspergers syndrome is ?

    As for not fitting in.  That is the story of my life.

    I was twice asked to leave training courses because i didn't fit in with the rest of the trainees. 

    I always had problems at school and in employment because I don't fit in.

    Now, I am having difficulty signing on universal credit, because I hate visiting the job centre and I can barely cope with being near the other people there.

    Sorry for the rant.

Children
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