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familay

sherbie

anyone having trouble with all family members not treating parents of autistic daughter with any respect or even listening to her parents dont know what to do anymore if i speak to family they go in a sulk and not speak or see us and our daughter suffers they also make out that our daughter is a liar and to much hard work we are at our wits end and feel so alone thanks

Parents

  • Hi, poor you, it is hard when those closest do not understand. You are not alone. The majority of us have unfortunately had a similar experience at some time. You may have tried offering booklets etc already. Can any of them accompany you to a mtg with specialists to help them see it is a real disability or watch some of programmes on iplayer that may help if they can see some similarities? I think some family take a long time to reach acceptance and some wld rather bury their head in the sand as find it painful and are afraid. For yourselves, we found giving  a bit of distance and being firm about living in a way  that was best for us as a family reduced our stress. It is easy to say but don't beat yourself up if they do not understand this complex and disguised condition but take comfort that you are strong enough to know you are right and doing your best for your daughter. We all want approval from our family but sometimes we do know better and should not feel guilty or bad about that. She needs you and you are being good parents supporting her. Sadly, our son, soon did not enjoy being around the family that do not understand. We now have brief visits when he is with us and would never leave him alone with them. Try to rise above it and keep hold of that courage. It may get better in time. 

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  • Hi, poor you, it is hard when those closest do not understand. You are not alone. The majority of us have unfortunately had a similar experience at some time. You may have tried offering booklets etc already. Can any of them accompany you to a mtg with specialists to help them see it is a real disability or watch some of programmes on iplayer that may help if they can see some similarities? I think some family take a long time to reach acceptance and some wld rather bury their head in the sand as find it painful and are afraid. For yourselves, we found giving  a bit of distance and being firm about living in a way  that was best for us as a family reduced our stress. It is easy to say but don't beat yourself up if they do not understand this complex and disguised condition but take comfort that you are strong enough to know you are right and doing your best for your daughter. We all want approval from our family but sometimes we do know better and should not feel guilty or bad about that. She needs you and you are being good parents supporting her. Sadly, our son, soon did not enjoy being around the family that do not understand. We now have brief visits when he is with us and would never leave him alone with them. Try to rise above it and keep hold of that courage. It may get better in time. 

Children
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