Piggle made a nest

Fed up today. Both boys back in school;..very reluctantly and already we are dealing with meltdowns on the way home:(

Next week I met and ed psychologist, have school meeting and see the mental health team about my anxiety...am making note to self that less meeting would me less anxiety for me and I need to work on this.

Am wearing a very hairy jumper today as my dog Piggle made a nest in it last night when she was frightened by the gale force winds...am seriously considering going back to bed .

Oatie

  • Many thanks for the advice,we are looking into educational right service,as for other help we are a bit limited as we live on an island in scotland.But great news just found out,Autistic society comming next week(hope im aloud to say this)to set a parent group up so we can all get help.

  • Hello bessie

    Sorry to hear things have been so difficult with school. I wonder if you might be interested in trying the Education Rights Service:

    http://www.autism.org.uk/Our-services/Advice-and-information-services/Education-rights-service.aspx

    They will be able to give you some advice about getting appropriate educational provision.

    Also below are some other advice lines which may be useful to you, perhaps the Parent to Parent Service to talk things through or the Community Care Service if you would like more information about other help which may be available to you?

    http://www.autism.org.uk/our-services/advice-and-information-services.aspx

    Good luck.

    Sandra -mod

  • Hi wolfbear,

    Your right, schools are employing the fog to get us lost.

    over 4 years now our son has not been educated properly.

    We just get meeting after meeting about him(think its excuse for teachers to have coffee and cake).

    Im not going to next meeting husband is,and he is going to let-rip as to what he thinks of the school messing us about.

    Because until they put in writing that they cant educate him we cant send our son to the speciel school he needs(they have said to us they have no department to take care of him,and they cant educate him) but we need it in wrighting.

    Hes at home again playing havoc around the house,upsetting everyone.i cant cope any more 4 years i feel like walking out on everyone.

    I dont get time to myself and cant even think about getting a job to help pay the bills.

    Im up all night with our old dog/poor thing but i dont want to say good bye to her yet or i will leave she is the only thing which is keeping me here.

    Im sooo tyerd and got a cold comming on,weathers no good here on the windy west island.No snow just rain,rain and more rain and of course wind.And no help from anyone.

  • Hello Wolfbear

    I've just replaced some of your words with asterisks as we don't allow swearing - I don't think it diminishes your message so I hope you won't mind.

    I will pass on your frustrations about the time-out issue. Thanks for taking the time to type out your message again.

    Sandra - mod

  • Oh wolfie I am so sorry you are having as frustrating a time as me. I agree with everything you said and it looks highly unlikely O will return to school after half term..we've had it trying to make them understand and I have given him a lot of time off lately where I taught him myself pretty easily.

    I am so annoyed for you that the support worker isn't what you hoped. I can understand why you feel so annoyed too. It's not helpful at all..as an NT (whatever that is anyway) I would find that scenario difficult to deal with. Is there any other option open? A better support worker etc?

    I wish we were nearer to help out. I feel frustrated for you and your partner...you have enough to cope with at present.

    I know you will battle on, as you are a resilient character. Thanks for the words of advice and they echo our thoughts this end totally. I feel like pulling up the drawbridge and pouring boiling oil over the lot of them.

    You take good care and speak when you are able.

    Oatie

    xxx

  • Glad the meeting went well and the new person sounds a good one. I hope you are still making progress and it's not too stressful to cope with?

    Had a very fruitless meeting at school last week, apparently it's only me who has a problem with my son...sigh..then in complete contradiction to this I had a list of issues O had done that shouted loud and clear he wasn't coping in school either. School are very blinkered to what really constitutes a problem and I left terribly frustrated.

    O had his initial appointment at the ASD team today but as the school haven't yet submitted their report we are none the wiser as to whether he will be considered for a full assessment. The people we saw were very nice and explained that they want to make sure O isn't suffering purely from stress due to his hospital admittances, which could make him appear asd or whether he has asd and stress together. I wish them luck picking through that minefield and don't envy them the task.

    Ah well onwards and sidewards once more.

    Hello to you all down south and sorry I haven't written too regularly lately but it's asthma season once more and it's been problematic (laughs and shakes head).

    Oats

    x