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Finding things VERY hard

mumto4devils&1angel

! Im so alone, have no support, his pediactrition is hard to get hold of, if not impossible ...they wont admit we need help with diet needs here as they wont connect them with autism my 12 year old autistic son is soiling himself on a daily basis, His school is miles away so I cant get him like I thought Id get lifts there but it costs me 25 quid each time school send him home (like today) with it..They rang n said he is crying n he has come home saying he wasnt crying!..He told them he dont need to go home but hey have sent him anyhow ...Docs have given him movical to get rid of a 'blockage' he has had last 10 years of his life apparently...he has for the first time in his life gone to high school with no 121 and gone into an SRB and every day im getting letters about him being rude agressive and shouting etc he cant cope yet his middle school said he is too smart for special school..social services wont help us cuz they 'dont deal with autism' even though I pointed out he beats the crap out of my children who are under 5 every single day even wacking round the head of my son who suffered a brain injury ....I do not know where to go or what to do anymore!! :'(

Parents

  • Hi, the only things I can add to wendyocd's brilliant advice is that when your son is being sent home by the school, do they not have a contract with a taxi company. My son is taxed to and from college. If he needs sent home they phone the taxi company to bring him home.

    Also my son had blockages too, he had an exray/scan and they said it was the worset they had seen. (made me feel bad, thought I hadnt been feeding him right, he was 6 at the time) I then found out that he had probably had it all his life and the diahoria we thought he had had all his life was in fact overflow and leekage. He was treated in hospital with enemas and then a course of laxsitives because his bowel had become enlarged and needed time to heal. This can be done under a general anisethetic as isnt nice for anyone let alone an autistic child.

    I also asked paid to have my son tested for food allergies privately. He ended up on a very strict diet that made a massive difference to his behaviour and stomache troubles. You dont need to pay you can introduse an exclusion plan to his diet, where you remove things for a time yourself and see what happens, it takes a long time but can make a big difference. Gradualy we started reintroducing foods and learnt what he could handle. Now at 16 his diet and bowels are a lot better.

    Hope you get some help

    Sam

    x

Reply

  • Hi, the only things I can add to wendyocd's brilliant advice is that when your son is being sent home by the school, do they not have a contract with a taxi company. My son is taxed to and from college. If he needs sent home they phone the taxi company to bring him home.

    Also my son had blockages too, he had an exray/scan and they said it was the worset they had seen. (made me feel bad, thought I hadnt been feeding him right, he was 6 at the time) I then found out that he had probably had it all his life and the diahoria we thought he had had all his life was in fact overflow and leekage. He was treated in hospital with enemas and then a course of laxsitives because his bowel had become enlarged and needed time to heal. This can be done under a general anisethetic as isnt nice for anyone let alone an autistic child.

    I also asked paid to have my son tested for food allergies privately. He ended up on a very strict diet that made a massive difference to his behaviour and stomache troubles. You dont need to pay you can introduse an exclusion plan to his diet, where you remove things for a time yourself and see what happens, it takes a long time but can make a big difference. Gradualy we started reintroducing foods and learnt what he could handle. Now at 16 his diet and bowels are a lot better.

    Hope you get some help

    Sam

    x

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