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Finding things VERY hard

mumto4devils&1angel

! Im so alone, have no support, his pediactrition is hard to get hold of, if not impossible ...they wont admit we need help with diet needs here as they wont connect them with autism my 12 year old autistic son is soiling himself on a daily basis, His school is miles away so I cant get him like I thought Id get lifts there but it costs me 25 quid each time school send him home (like today) with it..They rang n said he is crying n he has come home saying he wasnt crying!..He told them he dont need to go home but hey have sent him anyhow ...Docs have given him movical to get rid of a 'blockage' he has had last 10 years of his life apparently...he has for the first time in his life gone to high school with no 121 and gone into an SRB and every day im getting letters about him being rude agressive and shouting etc he cant cope yet his middle school said he is too smart for special school..social services wont help us cuz they 'dont deal with autism' even though I pointed out he beats the crap out of my children who are under 5 every single day even wacking round the head of my son who suffered a brain injury ....I do not know where to go or what to do anymore!! :'(

  • Hi, the only things I can add to wendyocd's brilliant advice is that when your son is being sent home by the school, do they not have a contract with a taxi company. My son is taxed to and from college. If he needs sent home they phone the taxi company to bring him home.

    Also my son had blockages too, he had an exray/scan and they said it was the worset they had seen. (made me feel bad, thought I hadnt been feeding him right, he was 6 at the time) I then found out that he had probably had it all his life and the diahoria we thought he had had all his life was in fact overflow and leekage. He was treated in hospital with enemas and then a course of laxsitives because his bowel had become enlarged and needed time to heal. This can be done under a general anisethetic as isnt nice for anyone let alone an autistic child.

    I also asked paid to have my son tested for food allergies privately. He ended up on a very strict diet that made a massive difference to his behaviour and stomache troubles. You dont need to pay you can introduse an exclusion plan to his diet, where you remove things for a time yourself and see what happens, it takes a long time but can make a big difference. Gradualy we started reintroducing foods and learnt what he could handle. Now at 16 his diet and bowels are a lot better.

    Hope you get some help

    Sam

    x

  • Also try the following for help and advice

    Help and advice from the Equality and Human Rights Commission

    The Equality and Human Rights Commission is a good source of advice if you feel you may have been discriminated against in education or elsewhere. The commission's helpline provides advice and information about the disability discrimination legislation to disabled people, their friends and families, employers, service providers, schools and colleges.

    Telephone: 08457 622 633

    Textphone: 08457 622 644

    Fax: 08457 778 878

    Lines are open Monday, Tuesday, Thursday and Friday 9.00 am to 5.00 pm; Wednesday 8.00 am to 8.00 pm.

  • Call the Education Rights Service on

    0808 800 4102

     For the Education Advice Line press option 1
    For the Tribunal Support Scheme press option 2

    Call this number and find out how they can help. Also ask them to help you get in touch with your local Autism Spectrum Outreach Support Service (ASCOSS). ASCOSS will your son in school and will also educate your sons school regarding his autism.

    NAS services for children
    Church House
    Church Road, Filton
    Bristol BS34 7BD
    UK

    Tel: +44 (0)117 974 8400
    Fax: +44 (0)117 987 2576
    Email: services@nas.org.uk

    Make an appointment with your GP and ask them to refer you to a different paediatrician for a second opinion. Ask that paediatrician for a scan/MRI of your sons bowels. DO NOT TAKE NO FOR AN ANSWER. Also ask your GP to refer your son to a counseler that is specialised in ASD regarding your sons overall behaviour.

    Make an appointment with the headteacher and tell them what you want changing regarding your sons treatment and what you want the school to do differently. If your still not happy, then tell the headteacher that you are going to make an official complaint to the Department of Education and then....

    Call the Department of Education on

    Telephone: 0370 000 2288
    Typetalk: 18001 0370 000 2288
    Fax: 01928 738248

    and make an official complaint against your sons school. Also get in touch with you local county council and ask them for how to get in touch with the Local Education Authority and make an official complaint wit5h them against your sons school. Then call Oftsed on the following number and make an official complaint against your sons school.

    By telephone

    The following helplines are open from 8.00am to 6.45pm, Monday to Friday:

    about education or adult skills 0300 123 4234                                about children’s services 0300 123 1231 prefix for Typetalk 18001 for text messages. Please note that in instances where we are unable to send a full reply by text message - for example, if the reply will be very long - we will send a text message offering to telephone you to discuss your query 60085 for textphone/Minicom users 0161 618 8524

    Call the Children and Young Peoples Service on 0845 034 9494 and find out who is responsible for your area and get in touch with them and find out what help/support you/your son is entitled to.

    Make an appointment with Citizens Advice and find out your rights regarding your sons schooling.

    Hope any of that helps and good luck