Feeling abit "lost" after diagnosis

Hi all,

Got diagnoised with Autism nearly 2 weeks ago (male 41 years old), waiting for the diagnostic report to get to me and Doctors in about a months time. 

Just feeling abit "lost" in terms of next steps and hope best to progress post diagnosis. I have done some basic research on Autism, but theres so much information out there (im aware not all good oreliable) it can feel overwhelming just thinking about looking into it more.  My diagnosis was validation of lifelong difficulties that did not fit another catergory(or the fact i never really fit in periodRofl) but also came with some sadness that it was not picked up on sooner and thus perhaps missing out on some better support and understanding. 

Its been a big year for me with medical retirement(not my choice) from a 16 year career i loved but couldnt do anymore as it was making me  ill and making existing conditions worse. Combined with my autism diagnosis, feels like a big year.

So currently im 41, retired but trying to find suitable work to help me recover from everything , whilst feeling like my world is flipped over to an extent. Also trying to figure out what my autism diagnosis means for work prospects and reasonable adjustments.

Suppose i am just trying to find my way again.

Sorry for the vent, thanks to those taking the time to read.

Parents
  • Welcome to the club!  My diagnosis was a little over a month ago, at the age of 69, so I understand a little of where you are now.  It's far too early in my journey to be able to offer anything constructive to help you, but I do wish you well as you get to understand yourself now.  Since my diagnosis, like you, I have been reading and learning more about autism and slowly understanding a little about what it means for me and how my life so far has been affected by it. 

    I can say that I am not sad at the way things have been, except that it would have perhaps been easier if I had known earlier.  This new place I am in (new in the sense that it is definitive now) is interesting and a little calmer in my head, as understanding helps when things get difficult.  As you say, so much of what you find on the internet is of questionable value, but the two things I have picked up on so far are that we are all different and we are all valid!  Take your time as you settle into your own unique 'normal', and good luck.

Reply
  • Welcome to the club!  My diagnosis was a little over a month ago, at the age of 69, so I understand a little of where you are now.  It's far too early in my journey to be able to offer anything constructive to help you, but I do wish you well as you get to understand yourself now.  Since my diagnosis, like you, I have been reading and learning more about autism and slowly understanding a little about what it means for me and how my life so far has been affected by it. 

    I can say that I am not sad at the way things have been, except that it would have perhaps been easier if I had known earlier.  This new place I am in (new in the sense that it is definitive now) is interesting and a little calmer in my head, as understanding helps when things get difficult.  As you say, so much of what you find on the internet is of questionable value, but the two things I have picked up on so far are that we are all different and we are all valid!  Take your time as you settle into your own unique 'normal', and good luck.

Children
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