The need to 'Fit In' V's 'Health & Well Being.'

I just went to a SEN review meeting today at my sons College, to glowing reports of his progress and efforts to 'Fit In.' An eagerly assemble video was put forward as evidence.

As I sat, I watched and witnessed a confident teenager address a class full of new intake SEN pupils, articulately and with apparent ease. Demonstrative with hands and clear in speach. To look at this child you'd never guess he had ASD and all at the meeting agreed it's the best presented 'new intake' session they'd ever had.

In speaking about the experience and the preparation that led up to his presentation it was clear he found the whole experience extremely challenging. The migraines prior, the worry about his word finding difficulties, the fear that he might misread a slide infront of the whole class (He has Dyslexia also) The list went on.

When asked by his SEN representative how he found it, he said very clearly, "Absolutely awful!" and proceeded to explain how he moved his hands around to disguise a fearful and fairly major tremor he'd developed prior and asked questions of others in order to divert the pressure away from himself, to name but a few.

As a parent, I was torn in two. He performed brilliantly. So brilliantly in fact that he convinced those in the class that he didn't have any difficulties himself and did this sort of thing all the time. Yet I have to question, Is making him appear 'normal' and as though he 'Fits In', what's really best for him?

It's clear he's developed some excellent acting skills. (He nearly had me fooled.) The mask was almost perfect, the tools he used were cunning and truely well thought out, but at what cost to his health?

The last academic year for him has been very challenging. He's had transition and academia to manage and with it a growing severity of migraines in their frequency and intensity. Is the pressure to 'Fit In' and appear 'normal' the starw to break the donkeys back?

I'm deeply proud of my sons achievments. From School refuser to comparative academic success, but where do we draw the line and at what cost does that come? When does it become OK to compromise our health so we can appear to 'Fit In'?

The holidays are almost apon us and he has long summer in which to recharge, but also with it is the looming pressure from College that he might want to entertain University. He's already said no to them, but it's like he's not been heard.

Perhaps we should all be re-evaluating the costs and considering options that mean he doesn't have to perform to an audience begging to witness social nomality, in exchange for a life free from stress related illness and mental angst......

I guess, recognizing ones own limits and the management of stress & social pressures is someting that comes with time, but an experience we can all learn from. Undecided

  • I dont see why there isnt a chatroom at this site...

    As to the educational issue, schools do NOT try to educate anyone!! Education involves assisting the growth and development of a mind to reach its potential. Schools offer vocational training, and cuboid minds fit cuboid offices nicely. This "fit in or else" policy is not accidental or stemming from a lack of understanding, it is the delibrately applied policy of corperate democracy.

    Has anyone read Huxley's Brave New World?

    Oh, one last thing: schools suppress the very idea of individual achievement to the point where kids of primary age know words like cooperative but not the word individual!!!

  • I have a suggestion. I can see some of us here may have a need to chat sometimes, and a forum tends to have a delay of hours or days before you get a reply. I hope I don't get thrown out for suggesting this as I don't want to undermine this forum. But would anybody be interested in a chatroom on Paltalk? I already host another room there, so I'm used to being a moderator. I'd be happy to open up an ASD room on there for an hour or two.

  • Regarding options for students finding college environments difficult can I suggest distance learning, whether Open University or HNC and variants or Foundation Degrees via a University or College.

    Open University allows you to build up modules with credit values either to achieve a full degree in time, or to supplement a shortfall for someone wanting to go to university or a particular job intake requirement.

    A deficiency of Open University in the past, as regards autism, is it operated from a number of centres which individually didn't seem to have enough disability knowledge, and didn't seem to involve central expertise. That may since have been resolved.

    Also OU modules can be challenging, as they are marked against guidelines which specify rather prescriptively the expected answer and level of detail. And exams are taken in strange places, like sports complexes in larger towns, which can be bewildering to get to and may be difficult environments.

    Foundation Degrees have had a struggle, due to poor Government Support, but allow people to get a vocational qualification in association with work experience, sometimes by day release, sometimes distance learning. They are organised via sector skills councils (somewhat chopped and changed by the present Government), and there are websites that identify the sector skills councils (nursing, catering, hairdressing, land management, building trades etc). A foundation degree is equivalent to completing year 2 of a University degree and can be topped up to a degree by completing a related third year. However they usual mean following a related job to meet the work experience requirement.

    Likewise HNC (Higher National Certificate), HND (HN Diploma), City and Guiilds, can be taken by day release or distance learning packages. They are preferably couched in work experience. They provide credits which can be built up with other components, potentially leading to a degree.

    I'm afraid having a Government cabinet made up largely of old boys from just one major public school with a highly selective and exclusive format is a grave mistake in our time. It might have been applicable a hundred years ago, in the modern world it can only lead to the gross failure to understand real people's needs, as is rapidly becoming apparent. It is not a political issue, but a government influenced by just one public school was doomed to lead us to the failures in public services we are now witnessing.

  • Thanks for your comments folks,

    It's great to hear that i'm not alone, but i'm saddened to know that others, like my sons, are suffering.

    One of my boys has dropped out of education altogether now and Im depsparate to find something he can do that doesn't chew him up and spit him out in the same way education has. The truth is, I'm a little lost.

    Ones been pressured toward a Uni option he doesn't want and the other toward not being a NEET. What are the options for post 16 on the Spectrum if you struggle to cope?!

    I've asked one of my sons about his college experience and says he feels he's done well to continue given the number of meltdowns he's had, but next year is A level and not AS and he has no option to retake modules again now the government has removed that choice for youngsters who want to achieve better grades. It's easy to see why so many simply give up and walk away. Creating the very NEET's the government say they want to help.

    I'm at a loss truly. And Disillusioned.

    Coogybear XX

  • The trouble is even if you can develop good acting skills to get through day-today situations, the pressure and stresses mount, and the consequences of this "front" breaking down get more serious.

    You then have the situation of being cricised for not managing to keep up a front the whole time, regardless of having surmounted disability to do this.

    Do these schools give any conseideration to this? I agree it is sheer arrogance and ignorance on the part of schools to adopt this attitude without regard to disability.

  • Hi Hotel california

     I can hardly believe that comment from the Ed Welfare Officer! Seems she's not exactly Autism Aware!

    I home educated my boys when it got really bad at primary level. Like you I had nosebleeds from one and vomiting from the other. At one point I brought my son in complete with his bucket and they eventually conceeded he was genuinely sick. However it took a letter from CAMH's before they understood it was due to their lack of support in the educational setting. Once they were statemented things changed and support was excellent in Secondary, but since their statements have ended and they are at College, it's been a complete lottery in whether they get the right support or indeed any support at all.

    Even the meeting today brought on a migraine for him and that was despite him assuring me that he wasn't stressed about it. I'd love to believe that a balance is possible, but it truly is so dependant on the enviroment they learn in and the support that's given. Undecided Stress management is so self driven, yet often remains so illusive to those on the Spectrum.

  • Hi coogybear

    This need to conform and fit in seems the mantra that schools aspire to.  Individuality and quirkiness are ok, to a degree,  but not recognized as a vital component within some schools. Some of the best minds are said to have asd, yet schools pride themselves on how well they stamp out things they consider abnormal.  

    My youngest was refusing to attend school as he was being bullied by teachers and schools response was "it's his perception"'.  It got so bad that he started to get nose bleeds before school, which I believe we're stress related, yet school still said he needed to come in as son as the bleed stopped.  He would go into school highly stressed and told he could not go home, no matter what.  Things escalated and he started to self harm.  I have removed him from this school.  Last week I attend a meeting and the ed welfare officer said he should not be treated any differently from any other child and MUST work to fit in.

    It beggars belief that these people are teaching our children.  I feel so sorry for those children who cannot speak out and are forced to conform or else they are seen as under achieving.

    Breaks my heart...