How do you experience grief of a loved one as an autistic person?

Yesterday was a bad day. Father’s day is always a trigger for me because my dad is dead. He died 10 years ago but it still doesn't feel like I've processed it. 

On days like yesterday I don’t just feel sad I feel 'more' autistic. I can’t talk to people. Everything irritates me and my anger becomes harder to control. I can only manage safe foods if anything at all and things like showering or cleaning just stop happening. 

Autism affects how we experience everything so it makes sense that it changes how we deal with death too. I’ve just never thought about grief specifically through the lens of autism until recently.

A friend of mine (who is also autistic) said they find grief a bit easier than others seem to because they're able to approach it more logically. I just thought it was an interesting contrast to my experience. 

I guess I'm just curious as to how other people here process or experience grief and how you think being autistic interacts with that? Does it make your experience harder? Easier? More isolating? Do you notice ways that grief affects you that may not be usual for neurotypical people? Or maybe neurotype doesn't come in to it at all and grief is just deeply personal and unique for every individual. 

Grief just feels like such a lonely thing for me and I don't really talk about it with most people. Maybe it's part of masking and as I get better an unmasking I'll get better at talking about it with neurotypical people. It just seems like one of those topics that's avoided by most and so I avoid it too. Maybe that's a societal thing. I don't know. Do people here also have that level of discomfort talking about grief or do you see it as just part of life? I thought it might help to hear how it looks for other autistic people.

Parents
  • My brother was a police officer who passed on the job back in 2013. It was a rough time for my family. I wasn’t super close to my brother, but I was still a little overwhelmed to begin with. Oh but then things went crazy. Because he was a police officer it was a huge hoopla; We had K9 officers from all over the state show up for his funeral, there were tons of memorial services, and I was overburdened with merchandise that have his badge number (Still do! This year I got ANOTHER sweater with his badge number for Christmas. Oh joy). I’ve even got a wine bottle with his face on it.

    Maybe it’s because of my Autism - or maybe it isn’t extraordinary considering the circumstances - but I’ve been so burnt out over mourning him for years. My parents still adore all the attention they get, but I want nothing to do with it. I try to pretend it never happened most days.

  • Prof, that must be really really difficult, I guess that it's not about wanting to forget, but about wishing to remember him as he was to you and not how he was seen by others? It's good that your parents take comfort from all the memorials, but if it were me then I think I'd feel pushed aside and that others were being invasive. I'd be really really upset and angry by merchandising, to me it would seem disrespectful. I'd be feeling like I was stuck in a time warp, where I couldn't move on, couldn't heal, whatever that means in your circumstance.

    I'm not going to come out with platitudes, like I'm sorry for your loss, but I am trying to hear you and respect your feelings.

  • Thank you! It really sounds like you get what I’m feeling. Wow.

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