autism and race - how common is it across the different groups out there

I mentioned here a few weeks ago that I was interested in finding more about the origins of autism as it seems to have a strong genetic component and I wondered if cultures which were more genetically isolated would have different levels of autism.

Well the bad news is that I couldn't find much data at all - the info on the communities I though would be most useful is not available or in a language that is too challenging to translate with accuracy.

The most interesting research info I came across was US based and talked about the differences between ethnic groups for diagnosis.

https://www.cdc.gov/ncbddd/autism/addm-community-report/spotlight-on-racial-ethnic-differences.html

This is a 2018 US report but is well written and quite accessable to read.

Note that the CDC has an alert at the top of the page that Trump is making them change the website so they don't know if the article will remain available.

The key points were a little surprising with whites being the least affected:

For the first time, the ADDM Network data found the percentage of 8-year-old children identified with ASD was higher among Black, Hispanic, and Asian or Pacific Islander (A/PI) children compared with White children.
Black - 2.93%
Hispanic - 3.16%
Asian - 3.34%
White - 2.43%

This is a surprise for me as the vast majority I have come in contact with have been white, certainly far more proportionally than their level of representation in the community.

There could be a lot of factors involved here - maybe my social circles are more exclusive than I though, maybe they have different views on sharing their diagnosis or maybe the higher rates of diagnosis are really only for youngsters who I don't really mix with much outside of my charity work.

Anyway, I just wanted to share the info here in case any were interested. I don't think there are any conclusions to be drawn from it but it does illustrate the genes seem present across all main cultural groups.

Parents
  • I am sure you have made a thorough job of researching the available statistics Iain. I suspect that at best the figures will give only a hint of the extent of autism, but as you say autism seems to affect varied cultures.  I am not knowledgeable in the field of statistics or autism, but I can’t accept that the figures would have taken into full account the extent of the problem of accurate diagnosis and the variables around criteria, gender, masking, educational background, culture, religion, economic situation, mental health …. etc. Moreover, existing studies seem to be small, or else aren’t accessible to the public. Where I live, parents of school age children are struggling to get their children assessed and some young people in the 18 - 25  age bracket are being referred only now. In this day and age, how have these young people gone through school and been missed or prevented from receiving a diagnosis. I have recently become interested in genomics and have learned that those of us not of African origin have between 1% and 3% genetic material derived from Neanderthals because Sapiens and Neanderthals interbred. The ancestors of today’s Asians interbred with Denisovan’s and those living in Papua New Guinea carry between 3.5% and 5% Denisovan genetic material. The Tibetans’ ability to live in extreme conditions at high altitudes is due to their Denisovan ancestors and the first Europeans were better able to cope with viruses such as the cold, and other pathogens, thanks to Neanderthal DNA. I cannot find any research looking at a possible connection between genetic origins and autism, but it is a fascinating and fast moving subject.

Reply
  • I am sure you have made a thorough job of researching the available statistics Iain. I suspect that at best the figures will give only a hint of the extent of autism, but as you say autism seems to affect varied cultures.  I am not knowledgeable in the field of statistics or autism, but I can’t accept that the figures would have taken into full account the extent of the problem of accurate diagnosis and the variables around criteria, gender, masking, educational background, culture, religion, economic situation, mental health …. etc. Moreover, existing studies seem to be small, or else aren’t accessible to the public. Where I live, parents of school age children are struggling to get their children assessed and some young people in the 18 - 25  age bracket are being referred only now. In this day and age, how have these young people gone through school and been missed or prevented from receiving a diagnosis. I have recently become interested in genomics and have learned that those of us not of African origin have between 1% and 3% genetic material derived from Neanderthals because Sapiens and Neanderthals interbred. The ancestors of today’s Asians interbred with Denisovan’s and those living in Papua New Guinea carry between 3.5% and 5% Denisovan genetic material. The Tibetans’ ability to live in extreme conditions at high altitudes is due to their Denisovan ancestors and the first Europeans were better able to cope with viruses such as the cold, and other pathogens, thanks to Neanderthal DNA. I cannot find any research looking at a possible connection between genetic origins and autism, but it is a fascinating and fast moving subject.

Children
  • If you look at sub-Saharan Africa there is more genetic diversity and more relict DNA from other earlier human species.

    I don't think ASC is confined to one genetic grouping, I think it's a basic human trait.

    Have a look at Gina Rippon's book, The Gendered Brain, to get some idea of how small the samples used in many of these studies really is and the massive conclusions they come to from such a minute sample size.