Help with Late diagnosis.

I’m due for my initial assessment through right to chose and I’m just so nervous about what’s going to happen and the process of it all.

is anyone able to help me prepare for it? What to expect etc? 

Parents
  • This is just my opinion, but I would gather as much related information about yourself and keep it in a word, or phone document. You can't be expected to remember all this stuff on the day, but somehow they do.

    Stuff like fitting in, social skills, bullying, special interests, sensory things and any anecdotes that support these. These still keep coming to me months after my assessment, so start keeping notes now. If you have any school reports that you think may back up your potential diagnosis then dig them out.

    If you have an ADOS-2 test after the initial assessment (probably weeks) try not to prepare for that at all because you'll think yourself in knots. As far as I remember the 'tests' themselves are not what they seem on the surface (not scary though!!) so you probably need to be yourself. If you prepare you may not react as you would normally.

  • Thank you! I think I’m just scared as I don’t know what to expect in the initial assessment. I think it’s just I want to make the most out of the appointment seeing as I’ve waiting for so long! Does that make sense? 

  • Totally! I 'passed' but I wish I had taken more notes with me.

Reply Children
  • I think my boyfriend whom is 38 and is a heroin addicts with a propensity to have very strange body motions and closes his eyes a lot of the day unless he is perseveration on a task for hours like weeding the community parks and yards of strangers may be undiagnosed autistic. I met him a year ago and blame his inappropriate insults and cruel behaviors on being wvil or narcissistic. But I am starting to sense he may be coping with Autism by using heroin and maybe his inappropriate behavior with other women (he seeks out filthy homeless women who are mentally ill to make me mad).  Might all be due to a serious mental health condition like autism. I feel terrible for being so hard on him if that is the diagnosis he missed out on in childhood.