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What does the community mean to you?

Anil A - Mod
over 10 years ago
 
Hi all,
 
You're probably aware that our online community is funded by charitable donations. To raise money for our services, such as our online community, it's helpful to let people know the difference a service can make. 
 
If you've got a few minutes, it'd be really helpful if you could let us know what our community means to you. We'll be using the responses here as part of future fundraising appeals, but it'll be anonymous. If you do comment here, I'll take it that you're happy for us to use your responses. Alternatively you can let us know by email  - mystory@nas.org.uk
 
 
Some news
-We're evaluating private messaging at the moment to see if it's feasible. I'm very much up for having this functionality, but there's a few hurdles. 
-We're in the process of training new moderators, which should help with the spam/research posts. 
 
 
Parents
  • over 7 years ago

    This site isn't autism friendly. It seems designed for neurotypical relatives. But relatives often seem to come here under the impression professionals will respond. There don't seem to be professionals here. And if the person gets a response from someone even better, ie who actually has autism, the relative can seem ungrateful. Maybe ignorance was bliss to them before. So when they have an answer they don't like they can turn on the messenger. This forum seems to be pretty useless from both sides.

    An autism forum should primarily be for those who have autism. For those with autism to debate, discuss & generally be normal autistic people. Without moderators removing all our hard work. It's a big slap in the face when they do this. Why not have a separate forum specifically for relatives, neurotypicals & those of a sensitive nature. That actually admits it's not designed for our benefit. It seems wrong to trade off our name, when you want us to be anything but autistic.

Reply
  • over 7 years ago

    This site isn't autism friendly. It seems designed for neurotypical relatives. But relatives often seem to come here under the impression professionals will respond. There don't seem to be professionals here. And if the person gets a response from someone even better, ie who actually has autism, the relative can seem ungrateful. Maybe ignorance was bliss to them before. So when they have an answer they don't like they can turn on the messenger. This forum seems to be pretty useless from both sides.

    An autism forum should primarily be for those who have autism. For those with autism to debate, discuss & generally be normal autistic people. Without moderators removing all our hard work. It's a big slap in the face when they do this. Why not have a separate forum specifically for relatives, neurotypicals & those of a sensitive nature. That actually admits it's not designed for our benefit. It seems wrong to trade off our name, when you want us to be anything but autistic.

Children
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