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Irritable bowel syndrome and Amitriptyline

Kate Kestrel

Hi everyone,

has anyone on here been prescribed low dose Amitriptyline for Irritable Bowel Syndrome- and if so - did it help at all?

A family member of mine (who is also autistic) has had long standing issues with digestive problems and a consultant has prescribed this for them. They’ve been taking PPIs for ages but haven’t helped much (in fact I sometimes wonder if they’ve made things worse in the long run). 

If anyone else has tried Amitriptyline for this issue (or for any reason) I’d appreciate any insights into whether or not it’s been helpful to anyone. 

thanks :) 

Parents

  • Hi Kate,

    I have IBS though I don't take any medication for it, I just deal with it in my unorthodox way. I had been given amitriptyline became my face goes numb and I get pins and needles inside and around my mouth. It had no affect and so I've been put on a different variant.

    Sorry I was of no help

  • in reply to Pikl

    Hi Pikl,

    thanks for sharing your experience - it is helpful - so no need to apologise! I’m sorry you’ve had to deal with this too - it’s not easy is it? My family member is so tired of struggling with it and trying lots of things - none of which seem to help. It’s so disheartening for them.  The side effects you experienced sound very unpleasant - I’m really sorry that happened to you. I never seem to have much luck with medication either - I sometimes wonder if autistic people are more sensitive t9 medication. 
    Do you mind sharing what has helped you with your IBS? Don’t worry if you don’t want to share this info though - I quite understand, it’s very personal after all.

    I hope you do get further improvement with your symptoms - and thank you so much for your reply - it’s really kind of you :) 

  • in reply to Kate Kestrel

    Hi Kate,

    Its looking like my facial issues are the result of prolonged anxiety,  but this is being investigated. 

    I don't mind sharing what I do when my IBS flares up, but it isn't the right way to address it, it's just my way. I'm not very good at looking after myself properly and I do tend to use harmful methods to deal with things. When my IBS flares I go on a food detox, that is I won't eat anything at all for 3 to 5 days. It's my way of resetting everything. Like I said, not the best way of dealing with it. X

  • in reply to Martin

    Yes - my stomach always reacts really badly to stress. I remember years ago my mum phoning me and telling me my dad had cancer and it affected my stomach immediately. 

  • in reply to Pikl

    Yes, I think stress is an important factor. Next to the brain, the gut is the most innervated part of the body. When my mother was in her terminal illness my gut problems were at their worst ever.

  • in reply to Martin

    Hi Martin, thank you for your reply. It's so nice being somewhere I don't feel like a weirdo. I went vegetarian 3 years ago and I feel that's really helped me. I also find that some foods bother me one day and then not the text. I'm beginning to wonder if it's more my poor stress management that affects me,  rather than the food itself, hence why it seems to change. Feel an experiment coming on.

  • in reply to Kate Kestrel

    I had never considered myself an anxious person. Now I'm coming to realise that my normal isn't what is considered normal. Story of my life really. 

    I'm currently looking for coping strategies at the moment and not finding anything useful. I was told by a therapist that my coping mechanisms to get me through the day are my biggest cause of anxiety. Do you sometimes feel like you just can't win?

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  • in reply to Kate Kestrel

    I had never considered myself an anxious person. Now I'm coming to realise that my normal isn't what is considered normal. Story of my life really. 

    I'm currently looking for coping strategies at the moment and not finding anything useful. I was told by a therapist that my coping mechanisms to get me through the day are my biggest cause of anxiety. Do you sometimes feel like you just can't win?

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