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Irritable bowel syndrome and Amitriptyline

Kate Kestrel

Hi everyone,

has anyone on here been prescribed low dose Amitriptyline for Irritable Bowel Syndrome- and if so - did it help at all?

A family member of mine (who is also autistic) has had long standing issues with digestive problems and a consultant has prescribed this for them. They’ve been taking PPIs for ages but haven’t helped much (in fact I sometimes wonder if they’ve made things worse in the long run). 

If anyone else has tried Amitriptyline for this issue (or for any reason) I’d appreciate any insights into whether or not it’s been helpful to anyone. 

thanks :) 

Parents

  • Hi Kate,

    I have IBS though I don't take any medication for it, I just deal with it in my unorthodox way. I had been given amitriptyline became my face goes numb and I get pins and needles inside and around my mouth. It had no affect and so I've been put on a different variant.

    Sorry I was of no help

Reply

  • Hi Kate,

    I have IBS though I don't take any medication for it, I just deal with it in my unorthodox way. I had been given amitriptyline became my face goes numb and I get pins and needles inside and around my mouth. It had no affect and so I've been put on a different variant.

    Sorry I was of no help

Children
  • in reply to Pikl

    Hi Pikl,

    thanks for sharing your experience - it is helpful - so no need to apologise! I’m sorry you’ve had to deal with this too - it’s not easy is it? My family member is so tired of struggling with it and trying lots of things - none of which seem to help. It’s so disheartening for them.  The side effects you experienced sound very unpleasant - I’m really sorry that happened to you. I never seem to have much luck with medication either - I sometimes wonder if autistic people are more sensitive t9 medication. 
    Do you mind sharing what has helped you with your IBS? Don’t worry if you don’t want to share this info though - I quite understand, it’s very personal after all.

    I hope you do get further improvement with your symptoms - and thank you so much for your reply - it’s really kind of you :)