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Not sure what to do!

mozlady

Hi,

My 6 year old was diagnosed with Able bodied Autism a month ago. We just dont know what to do. We always knew that something was diferent but now we have had the diagoisis we just dont know what to do next.

We seem to be suck im limbo waiting for reports from the hospital and it's very frustrating. Has anyone got any advice to offer us cause we are not sure what to do next. His behaviour is hard, we try to understand what hes going through but we come accross stummbling blocks all the time wondering how to deal with things. We cant take him out anywhere because he is a knightmere and the looks and responses we get from other people is awful. We have no support from family and friends and we feel so alone.

Any help would be greatly appreciated.

Moxlady

Parents

  • Dear Mozlady,

    I hope that you'll find the site a real support in not being quite so alone. I put my first post here, a couple od days ago and it was really good to have that contact and know others have helpful ideas or a sympathetic ear. 

    Our little one is 5 and was recently diagnosed, although I too knew, when we actually got the diagnosis it hit me REALLY hard. We too don't have family to help and yes it definitely can be hard work.

    BUT you will definitely get there. I've found over the last couple of months that bit by bit we've changed, our social life and activities change and we are taking new steps in a slightly new world with some friends and relationships and rather than "can't take him out anywhere" have found little by little new adjustments that work and new places to go. 

    A slightly cheesy phrase that I actually liked and that helped with others reactions was "people who matter don't mind, and those who mind just don't matter" and a paediatrician said when your child is being off the wall try to remember they may actually be doing the best with the situation they've been given. He said to think rather than oh my how awful, people are staring etc to think my child may be doing that because their brain doesn't like noise / pressure / crowds / spontaniety etc and so they're doing their best with where they are.  

    There are times I too think Oh my goodness !! but it really helps to find other families little by little who love, respect and understand raising a child with ASD and just one good bod who you can feel "safe" to visit etc, is worth a million.

Reply

  • Dear Mozlady,

    I hope that you'll find the site a real support in not being quite so alone. I put my first post here, a couple od days ago and it was really good to have that contact and know others have helpful ideas or a sympathetic ear. 

    Our little one is 5 and was recently diagnosed, although I too knew, when we actually got the diagnosis it hit me REALLY hard. We too don't have family to help and yes it definitely can be hard work.

    BUT you will definitely get there. I've found over the last couple of months that bit by bit we've changed, our social life and activities change and we are taking new steps in a slightly new world with some friends and relationships and rather than "can't take him out anywhere" have found little by little new adjustments that work and new places to go. 

    A slightly cheesy phrase that I actually liked and that helped with others reactions was "people who matter don't mind, and those who mind just don't matter" and a paediatrician said when your child is being off the wall try to remember they may actually be doing the best with the situation they've been given. He said to think rather than oh my how awful, people are staring etc to think my child may be doing that because their brain doesn't like noise / pressure / crowds / spontaniety etc and so they're doing their best with where they are.  

    There are times I too think Oh my goodness !! but it really helps to find other families little by little who love, respect and understand raising a child with ASD and just one good bod who you can feel "safe" to visit etc, is worth a million.

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