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Not sure what to do!

mozlady

Hi,

My 6 year old was diagnosed with Able bodied Autism a month ago. We just dont know what to do. We always knew that something was diferent but now we have had the diagoisis we just dont know what to do next.

We seem to be suck im limbo waiting for reports from the hospital and it's very frustrating. Has anyone got any advice to offer us cause we are not sure what to do next. His behaviour is hard, we try to understand what hes going through but we come accross stummbling blocks all the time wondering how to deal with things. We cant take him out anywhere because he is a knightmere and the looks and responses we get from other people is awful. We have no support from family and friends and we feel so alone.

Any help would be greatly appreciated.

Moxlady

Parents

  • Hello there,

    If in the UK, there should be support services you can access through your child's school - excuse me if I'm making assumptions - but if he is in school in th uk, speak to the Special Needs Co-ordinator about what's available, as unfortunatley it does vary depending on where you are in the country. Hopefully some or all of the following

    1. A home/school liaison book to celebrate successes and share concerns. 2. Outreach Support Service for school and for yourselves (including home visits if needed), from Specialist teachers who can offer advice and support, especially around behaviour and getting out and about issues 3. CAMHS, (Child & Adolescent Mental Health Services), accessible through your GP or school support services may be able to give support and advice 4. SEN services at your Local Authority can help with school provision etc, and will also be able to steer you in the direction of Parent Partnership Services, which can guide you through what's available in your area 5. In my experience, for many people what helps the most is talking to others in the same situation, so if you can find out if Earlybird or Earlybird+ are happening in your area (parent partnership would know), this would be good.

    Finally, hang on in there, I really feel for you reading your post. Effective communication is often key to reducing behaviour problems - I'm guessing a Speech & Language Therapy report may be one you are waiting for? If not, push for this, as once you & your child can engage in effective 2 way communication at whatever level is appropriate, I think you'll find you take huge steps forward. I hope you soon find the local support you need to help you feel not so alone. 

     

Reply

  • Hello there,

    If in the UK, there should be support services you can access through your child's school - excuse me if I'm making assumptions - but if he is in school in th uk, speak to the Special Needs Co-ordinator about what's available, as unfortunatley it does vary depending on where you are in the country. Hopefully some or all of the following

    1. A home/school liaison book to celebrate successes and share concerns. 2. Outreach Support Service for school and for yourselves (including home visits if needed), from Specialist teachers who can offer advice and support, especially around behaviour and getting out and about issues 3. CAMHS, (Child & Adolescent Mental Health Services), accessible through your GP or school support services may be able to give support and advice 4. SEN services at your Local Authority can help with school provision etc, and will also be able to steer you in the direction of Parent Partnership Services, which can guide you through what's available in your area 5. In my experience, for many people what helps the most is talking to others in the same situation, so if you can find out if Earlybird or Earlybird+ are happening in your area (parent partnership would know), this would be good.

    Finally, hang on in there, I really feel for you reading your post. Effective communication is often key to reducing behaviour problems - I'm guessing a Speech & Language Therapy report may be one you are waiting for? If not, push for this, as once you & your child can engage in effective 2 way communication at whatever level is appropriate, I think you'll find you take huge steps forward. I hope you soon find the local support you need to help you feel not so alone. 

     

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