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ASD assessment, Pending outcome = confusion

JadeBug

Hey there,

Thanks in advance for reading my ramble :)

SO ..After being told for years by my ND friends that I "scream Autism" My friend helped me get tested! 

I was referred to a diagnostic centre by my GP and things moved VERY quickly!

After looking online it seems 3-5 years  is the standard waiting time from referral to diagnosis/non diagnosis. Mine has all happened  within 3 months! i'm in awe at the speed but I wasn't prepared for it to be this quick!! 

I filled in the forms, questionnaires etc and was invited to a phone call to discuss my childhood etc - I was then invited to a video call assessment.

The assessment itself  made me feel very uneasy and honestly quite stupid at times - after the call ended I had a small breakdown on my bestie because I thought I'd messed everything up not being able to do some stuff and getting confused etc .... but y'know .. it is what it is lets just wait and see 

Whilst waiting for my results I've got myself frantic about "what if i'm not autistic?"  due to the fact i've been researching my "symptoms" and if I'm not autistic I'd likely have a personality disorder (think sociopath ... D:) so now I'm panicking! 

I JUST GOT AN EMAIL THAT MY FIRST FEEDBACK SESSION IS TOMORROW EVENING! 

1. why are there two feedback sessions? 

2. what happens if I'm not ASD?

3. What happens if I AM  ASD ? 

Parents

  • You are the same person whatever result you get from this assessment. I’m going through the process now (have filled out the forms. Had one video interview - and the main assessment is this summer. I’ve thought the same -  ‘what if they say I’m NOT autistic’ - but to be honest I know that I am. It’s not rocket science - you can find all the info online about the criteria. My son got  a diagnosis of autism about 10 years ago and frankly I know autism, I’ve read enough and experienced enough to know that I’m autistic. I’m going for diagnosis just in case I need reasonable adjustments made when I’m older and needing support in any way (such as healthcare). I have mixed feelings about the whole thing though. 


    having a diagnosis is everything and it’s nothing. 

    in terms of support if you have a diagnosis as an adult  - there isn’t really any! 

Reply

  • You are the same person whatever result you get from this assessment. I’m going through the process now (have filled out the forms. Had one video interview - and the main assessment is this summer. I’ve thought the same -  ‘what if they say I’m NOT autistic’ - but to be honest I know that I am. It’s not rocket science - you can find all the info online about the criteria. My son got  a diagnosis of autism about 10 years ago and frankly I know autism, I’ve read enough and experienced enough to know that I’m autistic. I’m going for diagnosis just in case I need reasonable adjustments made when I’m older and needing support in any way (such as healthcare). I have mixed feelings about the whole thing though. 


    having a diagnosis is everything and it’s nothing. 

    in terms of support if you have a diagnosis as an adult  - there isn’t really any! 

Children
  • in reply to Kate Kestrel

    Thank you! I think I'm autistic and I've read if you're AFAB and have done research and come to that conclusion you likely are Joy I just like to overthink .. 

    Everything gets blamed on my anxiety & depression (which we think is actually the result of undiagnosed autism but anyway) so i think I'm scared ill get fobbed off again

    I hope your assessments go well this summer!