arghhhhh im very angry

On being told that my 6 year old son has Autism on Tuesday i have found the ignorance of some people shocking, one person   Family friend said well he doesnt look autistic. for heavens sake i mean can any of you tell me what they mean and what would make a child look Autistic. im so annoyed yes in many ways my son looks every bit the perfect child but who gives people the right to say what a child with Autism or an ASD is too look like. agrhhhhhhhhhhhh

Parents
  • I am not so sure about these symptoms being "fraud" as I've witnessed them with students I've helped and I have my own experiences of poor eye contact to go on.

    Nowadays it has been commented that I appear to have good eye contact, but in fact I mostly look at people's mouths (I cannot lip read but they are less disturbing than eyes). If I do make eye contact I don't think I get much information, though I understand about gaze. When younger I looked downwards a lot to avoid it.

    I think the point is that some manifestations are acquired as a response to the environment or to avoid difficulty. But which these are is hard to say. It is striking how some young adults lose many of their manifestations at University - whether that's becauise the environment is less peer driven, or confidence reduces the need for some conspicuous compensatory tactics I don't know. Its an area where more research is needed.

    I am fairly sceptical about a lot of cures which purport to resolve social integration problems, but probably enable individuals to cover-up and play act through social situations more. This artificial integration may be a good thing though - developing good coping strategies improves confidence and enables partial social integration. However neurotypicals can be hard on people partly succeeding at social integration, and prefer disabled people to look and act the part.

Reply
  • I am not so sure about these symptoms being "fraud" as I've witnessed them with students I've helped and I have my own experiences of poor eye contact to go on.

    Nowadays it has been commented that I appear to have good eye contact, but in fact I mostly look at people's mouths (I cannot lip read but they are less disturbing than eyes). If I do make eye contact I don't think I get much information, though I understand about gaze. When younger I looked downwards a lot to avoid it.

    I think the point is that some manifestations are acquired as a response to the environment or to avoid difficulty. But which these are is hard to say. It is striking how some young adults lose many of their manifestations at University - whether that's becauise the environment is less peer driven, or confidence reduces the need for some conspicuous compensatory tactics I don't know. Its an area where more research is needed.

    I am fairly sceptical about a lot of cures which purport to resolve social integration problems, but probably enable individuals to cover-up and play act through social situations more. This artificial integration may be a good thing though - developing good coping strategies improves confidence and enables partial social integration. However neurotypicals can be hard on people partly succeeding at social integration, and prefer disabled people to look and act the part.

Children
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