New face

Hi Im new to this site and only discovered it while looking on you tube.  I have a beautiful boy who is 2yrs and 10mths.  He is currently being assessed ongoing.   He has speech and language impairment (no speech) and developmental delay.  Hes awaiting an MRI scan (1 yrs waiting list).  Basically I am waiting to be told he has Autism.  Its been almost a year now since his first assessment but its been the longest year of my life.  I have battled depression, guilt and even suicidal thoughts.  Just would like to hear some friendly faces and know that Im not alone.  Thanks for listening, I could go on for ages but think its nearly bedtime.

Parents
  • Still fighting for all the help we can get.  The only thing I can recommend is to keep calling the hospital or wherever you are on a waiting list and keep on at them.  We got put on a waiting list and then left having been told it would be 6 months.  I rang up and basically told them everything we are going through and this got us help more quickly.  My son has been suspended from school approx 10 times in the last year and it's been a real fight to get help but I now have lots of useful numbers in my area and am working my way through it asking for more help.  If you sit and wait "nicely" you will be left to do just that (imho) so you really just have to make a bit of a nuisance of yourself I'm afraid.  It shouldn't be that way but it is.  Max didn't  speak until he was about 3.5 and would not socialise with other children in any setting and we were told this was normal.  We only got help because the school nurse came to our house and realised that the Max at home is massively different to the Max at school.  At school he is aggressive, constantly hiding, destructive, the list goes on.  This behaviour didn't manifest so badly at home as we were managing it without realising we were doing it so I was made to believe that I was a bad parent with an outrageously naughty child :(  My poor boy spent most of last year being punished for something we now know he cannot control.  Just keep pushing - if you are on the waiting list at the hospital they have a really useful booklet that everyone gets in my area (I guess it's all the same everywhere?) we have been sent it early so that we can crack on with getting help.  Very much worth finding out if there are any groups of parents with similar problems local to you as we got soooo much information from there too that we probably wouldn't have got otherwise.

Reply
  • Still fighting for all the help we can get.  The only thing I can recommend is to keep calling the hospital or wherever you are on a waiting list and keep on at them.  We got put on a waiting list and then left having been told it would be 6 months.  I rang up and basically told them everything we are going through and this got us help more quickly.  My son has been suspended from school approx 10 times in the last year and it's been a real fight to get help but I now have lots of useful numbers in my area and am working my way through it asking for more help.  If you sit and wait "nicely" you will be left to do just that (imho) so you really just have to make a bit of a nuisance of yourself I'm afraid.  It shouldn't be that way but it is.  Max didn't  speak until he was about 3.5 and would not socialise with other children in any setting and we were told this was normal.  We only got help because the school nurse came to our house and realised that the Max at home is massively different to the Max at school.  At school he is aggressive, constantly hiding, destructive, the list goes on.  This behaviour didn't manifest so badly at home as we were managing it without realising we were doing it so I was made to believe that I was a bad parent with an outrageously naughty child :(  My poor boy spent most of last year being punished for something we now know he cannot control.  Just keep pushing - if you are on the waiting list at the hospital they have a really useful booklet that everyone gets in my area (I guess it's all the same everywhere?) we have been sent it early so that we can crack on with getting help.  Very much worth finding out if there are any groups of parents with similar problems local to you as we got soooo much information from there too that we probably wouldn't have got otherwise.

Children
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