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Aspergers - recommended reading?

NAS71944

Hi I’m after some advice, my daughter has just had an aspergers screening alongside a test for dyslexia and she scored quite highly so the outcome was that she has dyslexia and very strong aspergers tendencies. On reflection I see them now and I really want to help her prepare for stepping into Uni life later this year. I feel the better she understands the things she struggles with the easier it will be for her to communicate her needs to others and manage new situations. I have done some Googling but a lot of info is based around people who have more severe symptoms. I was just wondering if anyone has any advice on literature or avenues of help for someone who is more borderline.

we are going to speak to the GP about if a full assessment is possible but I just want to give her as much support as I can.

thanks Blush

  • Take a look at this recent thread. There are a few titles there that I would go for.

    https://community.autism.org.uk/f/adults-on-the-autistic-spectrum/21033/book-podcast-recommendations

    I am doing a workbook called "I am Special", which has been quite useful so far. 

  • Additionally, if your daughter is aspie, she will probably suffer terribly from anxiety and stress - every single unknown will push further towards panic - the more things you can do to remove those stresses by making sure she has escape strategies for every situation, the more she will be capable of.      Even things like "if it's all going wrong, ring me and I will come for you/"    Safety net stuff - providing all the options for her - but most important is actually doing what you say - total reliability and predictability so she can count on you.

    The stronger her foundations, the more robust she'll be.

    If she's staying at uni, check for catered halls - it takes the cooking / food hassle away if she's not a confident cook.      The restaurants can be a bit expensive if you use them every time.

  • Speak to DSA asap (NOW) to get funding in place for her - that could include a mentor to keep in close contact with her, any special equipment she needs and if she's going to a local uni, maybe paid transport back & forth.  (depending on the course, the attendance hours maybe minimal so spending all day at uni for weeks on end may be depressing if she doesn't do friends).

    Speak to whichever uni she's planning on going to to get support in place for her - they have dedicated teams for this - but some are much better than others......

    Is she going to be staying at the uni or commuting?       Is it miles away?       How many hours / week will she be doing?  How social is she?     How social is the uni (my daughter's one was terrible - it basically shut on the weekends).

    More distance can mean more stress - and much more stress if she urgently needs help - my daughter's was (handily) only 12 minutes away.     That, combined with the ridiculous cost of halls and the minimal attendance hours meant it was easier for her to commute - I could drop her off and have a coffee in the restaurant and then take her home.  Smiley.

    An NHS assessment can take up to 2 years - I've heard of some universities doing it for their students-  not been confirmed.

    A private diagnosis can be done in a couple of weeks - costs can be anything from £800 - £2k - but you must make sure any private report will be accepted by the DWP and NHS.   

    If you are working and have private healthcare, her diagnosis may be covered under your policy - do some digging.