Is there an advocacy service for autistic adults in the UK

Hello

We have a local advocacy service run by Rethink volunteers and mine left in Sept 2019 and has not been replaced despite being chased up.

I do not want to work with rethink.

Does anyone know if there is an advocacy service for autistic adults in the uk as I have a consumer complaint regarding a tradesman and Trading standards do not put problems right or get refunds. The tradesman has left my property at risk of leaks through improper work. I contacted the trade body who they are a member of, they sent me a complaints form in Microsoft Word format. I returned it in .pages format. The tradesman would only look at one minor non risky problem a toilet seat and closed the case.

They told me to contact citizens advice bureau but they could not open the .pages document which I put my complaint on to the trade body.

This leads me to think that the trade body could not open it either, so I feel that the important complaints were missed. 

The trade body refuse to open the case and I think this is unfair as my property is now at risk of leaks. I have spoken to other plumbers who confirm my feelings on the shoddy work.

I need an advocate to speak to the trade body to open the case again for me as the trade body are not budging yet I feel they have not read my complaint. 

Can anyone help. 

Parents
  • cut and paste the word document text into a "Wordpad" or "Notepad" text file and send it to the CAB again.  If u get it correct the file should be a dot TXT file.

  • I managed to convert it to word, I just need to know if there is an advocacy service for autistic people thanks.

  • i dont know of one but why not ring the NAS helplines in case they know of someone

    www.autism.org.uk/.../contact-us

  • This is what I find sickening, making health and wellbeing cost.

    So the false support is just looking like help but doing nothing.

    This sounds really grim.

    What depressing reading.

    I'm not good with vagueness, dunno if it's my autism but I like things spelt out.

    Being passed from one organisation to another, who do nothing for you must be soul destroying.

  • Its influenced by the current financial situation and lack of funding and the organizations issues with mismanaging their funding of their service despite most of them run a nonprofits or charities.

    I am not being cynical when i say that there are no physical or productive support or intervention to support adult with autism. A phone call or facetime conversation isn't adequate support to help people like me learn day to day coping techniques that will help someone with autism sustain Employment & Gain employment.

    Mental health services have engulfed neurodevelopmental services for those aged sixteen to twenty five in most area of the UK. the funding isn't going into improving the diagnosing and support of this individuals with neurodevelopmental disorder and learning difficulties and are rarely be assessed for during mental health assessments. Most of the times from experience mental health nurses will refuse to look into it further and their training and understanding is usually out of date or misinformed based on the own individual knowledge.

    This is a major issue because the way the under twenty five mental health service operates and makes individuals who are awaiting to be diagnosed between the ages of sixteen and twenty five go through the system multiples time to be lost in the administration system and usually are forced to wait until they are are over the age of twenty five to get the support when they are moved to adult services. These individuals are not only been through crisis from age of sixteen but have missed out on opportunities to attend college and learn skills with the right support in place. most of them once they get the diagnoses can't afford to pay for college which would of been fully funded when they where under the age of twenty five.      

    The false help which i am talking about is when an organisation and charity use an individual to gain funding from the local authority but don't provide what they agreed to when you signed the agreement, They promised actual support but fail to deliver anything once they have got your signature.      

    Most of the information provided is negligently by this organisations and should not keep educating parents with such a vague explanation. Most parent miss interpret the information and cause physiological harm to their children.

    The employment support i mentioned should be said that i am still waiting for them to arrange to fit me into the group sessions and i was passed on from one organisation to another organization to another organization to another organization to get the same useless support the previous organization was providing. 

Reply
  • Its influenced by the current financial situation and lack of funding and the organizations issues with mismanaging their funding of their service despite most of them run a nonprofits or charities.

    I am not being cynical when i say that there are no physical or productive support or intervention to support adult with autism. A phone call or facetime conversation isn't adequate support to help people like me learn day to day coping techniques that will help someone with autism sustain Employment & Gain employment.

    Mental health services have engulfed neurodevelopmental services for those aged sixteen to twenty five in most area of the UK. the funding isn't going into improving the diagnosing and support of this individuals with neurodevelopmental disorder and learning difficulties and are rarely be assessed for during mental health assessments. Most of the times from experience mental health nurses will refuse to look into it further and their training and understanding is usually out of date or misinformed based on the own individual knowledge.

    This is a major issue because the way the under twenty five mental health service operates and makes individuals who are awaiting to be diagnosed between the ages of sixteen and twenty five go through the system multiples time to be lost in the administration system and usually are forced to wait until they are are over the age of twenty five to get the support when they are moved to adult services. These individuals are not only been through crisis from age of sixteen but have missed out on opportunities to attend college and learn skills with the right support in place. most of them once they get the diagnoses can't afford to pay for college which would of been fully funded when they where under the age of twenty five.      

    The false help which i am talking about is when an organisation and charity use an individual to gain funding from the local authority but don't provide what they agreed to when you signed the agreement, They promised actual support but fail to deliver anything once they have got your signature.      

    Most of the information provided is negligently by this organisations and should not keep educating parents with such a vague explanation. Most parent miss interpret the information and cause physiological harm to their children.

    The employment support i mentioned should be said that i am still waiting for them to arrange to fit me into the group sessions and i was passed on from one organisation to another organization to another organization to another organization to get the same useless support the previous organization was providing. 

Children
  • This is what I find sickening, making health and wellbeing cost.

    So the false support is just looking like help but doing nothing.

    This sounds really grim.

    What depressing reading.

    I'm not good with vagueness, dunno if it's my autism but I like things spelt out.

    Being passed from one organisation to another, who do nothing for you must be soul destroying.