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Frankley I'm disgusted by the NAS (wait for the Censorship)

Stuffed

I contacted the NAS wanting help as an adult who has been diagnosed with aspergers and now 34.

After a shambles of an advice line that to be totally honest was a waste of time after over a week of trying to get in contact with 2 people doing one persons job.

City Road Address and yet there is no call queue system and two part time people doing one persons job- shows how little they really want non residential people.

I receive direct payments and with the NAS allegedly championing Aspergers

(it seems to get donations) I expected that I would get some support and advice, not fobbed off to Citizens Advice.

Unhappy with what frankly I think comes close to fraud collecting donations from people believing they are donating to Autism/Aspergers Charity and yet when I have a dire situation-they couldn't care less.

I contacted a certain professor and he kindly offered to pass my experiences onto Mark Lever for me and has been a most pleasant person to chat via email to.

I'd hoped that there was some misunderstanding and a professor contacting the chief exec would result in some further contact and assistance.

But no, I had my carer's assistance to visit citizens advice and now have a dreadfully slow solicitor involved- but at least they listened and provided help.

I have also asked my MP to help and been told that they would intervene on my behalf.

So the net result as a documented Adult with written Diagnosis of Asperger hoping for help from the NAS- Nothing and for me the most shocking part of this is the fact that those less able than myself will have nowhere to turn to.

So I've reported the NAS to the charities commission- doubt much will happen

I fully expect the thread to get deleted- but then again it will only confirm that the NAS want people's money and Adults in Care in the community are left with no Support.

Thank You for NOTHING

Parents

  • Stuffed said:
    I'm of the opinion until proved otherwise that the NAS obsessed with maintaining its position and as we are not residential we are of no value in the scheme of chargable income.

    One of the strengths of the NAS is in providing residential support services for people with strong cases of traditional autism. However, these comprise only a small fraction of the total ASD population. The vast majority of children and adults with Asperger syndrome do not require such services.

    The NAS was originally a charity for people with traditional autism which many decades later latched onto Asperger syndrome after it became public knowledge that it was part of the autistic spectrum. They did nothing to identify AS during the 1970s and 80s when it was unknown in Britain and they were probably no more use than a charity for wheelchair users for people with AS who could walk back then. My own view is that as a result of this situation, the NAS still remains stuck in the world of traditional autism despite the greatest growth in ASD numbers since the mid 1990s being people with Asperger syndrome.

    Looking at the link you posted it shows the NAS are hooked so far into government funding they will not bite the hand that feeds it.

    I have lost count of the number of times this phrase has been mentioned in conjunction with the NAS. I suspect that the real reason why the NAS did not support Talha Ahsan like Gary McKinnon is because the government threatened to terminate their funding if they chose to mount a high profile campaign in support of him.

    In the video of the Full Gary McKinnon Press Conference 2012 Mark Lever talks about Asperger syndrome and the extradition at 8:28 but he fails to mention Talha Ahsan. At 19:20 he mentions the importance of intervention for ANYONE with Asperger syndrome. Pause the video at 19:49 and notice the blank expression on Mark Lever's face when Talha Ahsan is mentioned.

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  • Stuffed said:
    I'm of the opinion until proved otherwise that the NAS obsessed with maintaining its position and as we are not residential we are of no value in the scheme of chargable income.

    One of the strengths of the NAS is in providing residential support services for people with strong cases of traditional autism. However, these comprise only a small fraction of the total ASD population. The vast majority of children and adults with Asperger syndrome do not require such services.

    The NAS was originally a charity for people with traditional autism which many decades later latched onto Asperger syndrome after it became public knowledge that it was part of the autistic spectrum. They did nothing to identify AS during the 1970s and 80s when it was unknown in Britain and they were probably no more use than a charity for wheelchair users for people with AS who could walk back then. My own view is that as a result of this situation, the NAS still remains stuck in the world of traditional autism despite the greatest growth in ASD numbers since the mid 1990s being people with Asperger syndrome.

    Looking at the link you posted it shows the NAS are hooked so far into government funding they will not bite the hand that feeds it.

    I have lost count of the number of times this phrase has been mentioned in conjunction with the NAS. I suspect that the real reason why the NAS did not support Talha Ahsan like Gary McKinnon is because the government threatened to terminate their funding if they chose to mount a high profile campaign in support of him.

    In the video of the Full Gary McKinnon Press Conference 2012 Mark Lever talks about Asperger syndrome and the extradition at 8:28 but he fails to mention Talha Ahsan. At 19:20 he mentions the importance of intervention for ANYONE with Asperger syndrome. Pause the video at 19:49 and notice the blank expression on Mark Lever's face when Talha Ahsan is mentioned.

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