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Frankley I'm disgusted by the NAS (wait for the Censorship)

Stuffed

I contacted the NAS wanting help as an adult who has been diagnosed with aspergers and now 34.

After a shambles of an advice line that to be totally honest was a waste of time after over a week of trying to get in contact with 2 people doing one persons job.

City Road Address and yet there is no call queue system and two part time people doing one persons job- shows how little they really want non residential people.

I receive direct payments and with the NAS allegedly championing Aspergers

(it seems to get donations) I expected that I would get some support and advice, not fobbed off to Citizens Advice.

Unhappy with what frankly I think comes close to fraud collecting donations from people believing they are donating to Autism/Aspergers Charity and yet when I have a dire situation-they couldn't care less.

I contacted a certain professor and he kindly offered to pass my experiences onto Mark Lever for me and has been a most pleasant person to chat via email to.

I'd hoped that there was some misunderstanding and a professor contacting the chief exec would result in some further contact and assistance.

But no, I had my carer's assistance to visit citizens advice and now have a dreadfully slow solicitor involved- but at least they listened and provided help.

I have also asked my MP to help and been told that they would intervene on my behalf.

So the net result as a documented Adult with written Diagnosis of Asperger hoping for help from the NAS- Nothing and for me the most shocking part of this is the fact that those less able than myself will have nowhere to turn to.

So I've reported the NAS to the charities commission- doubt much will happen

I fully expect the thread to get deleted- but then again it will only confirm that the NAS want people's money and Adults in Care in the community are left with no Support.

Thank You for NOTHING

Parents

  • Scorpion0x17 said:

    I hope you realise, Stuffed, that if you do get help from NAS now, you will have become one of the priveliged few, that get help through kicking up a fuss, and that the rest of us that are no more but also no less deserving of help will still be ignored.

    That is not to say that you shouldn't get help.

    Rather that we are all equally deserving of help, and it should not be he who shouts loudest, or kicks hardest, that gets that help.

    Should not be the way it is and I agree with your post, the NAS need to really accept and change-rather than "lip service"

    I have found it an almost impossible struggle to get progress even when I have the nhs partnership own internal notes. 

    Also while the NAS have posted the links which to be honest in my opinion are as much use as a google search.

    The key problem in my opinion is that someone calling the advice line in desperation there is no support or follow up.

    This allows certain organisations to act with impunity and when concerns are raised there is no follow up. Finding a solicitor even willing to challenge an nhs partnership has been a nightmare, so far a legal aid form and explanation of events has been given to solicitor and it has dragged along.

    If others have experienced similar I would encourage a polite and factual post.

    Your post should be 

    1) problem

    2) action taken

    3) outcome 

    www.civilsociety.co.uk/.../national_autism_society_reports_53m_surplus&ui-state=dialog

    So 5.3 million surplus on back of residential income,donations on back of autism /aspergers -there are definitely funds are available to make improvements.

    With the current situation abuse is allowed to happen with almost Jimmy Saville impunity- tell who you like and show evidence and nothing will happen and no follow up my experience.

    These situations are fertile situations for malicious individuals to act in abusive and vindictive manner while allegedly in a position of power and trust as there is no accountability and they know this!

Reply

  • Scorpion0x17 said:

    I hope you realise, Stuffed, that if you do get help from NAS now, you will have become one of the priveliged few, that get help through kicking up a fuss, and that the rest of us that are no more but also no less deserving of help will still be ignored.

    That is not to say that you shouldn't get help.

    Rather that we are all equally deserving of help, and it should not be he who shouts loudest, or kicks hardest, that gets that help.

    Should not be the way it is and I agree with your post, the NAS need to really accept and change-rather than "lip service"

    I have found it an almost impossible struggle to get progress even when I have the nhs partnership own internal notes. 

    Also while the NAS have posted the links which to be honest in my opinion are as much use as a google search.

    The key problem in my opinion is that someone calling the advice line in desperation there is no support or follow up.

    This allows certain organisations to act with impunity and when concerns are raised there is no follow up. Finding a solicitor even willing to challenge an nhs partnership has been a nightmare, so far a legal aid form and explanation of events has been given to solicitor and it has dragged along.

    If others have experienced similar I would encourage a polite and factual post.

    Your post should be 

    1) problem

    2) action taken

    3) outcome 

    www.civilsociety.co.uk/.../national_autism_society_reports_53m_surplus&ui-state=dialog

    So 5.3 million surplus on back of residential income,donations on back of autism /aspergers -there are definitely funds are available to make improvements.

    With the current situation abuse is allowed to happen with almost Jimmy Saville impunity- tell who you like and show evidence and nothing will happen and no follow up my experience.

    These situations are fertile situations for malicious individuals to act in abusive and vindictive manner while allegedly in a position of power and trust as there is no accountability and they know this!

Children
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