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Frankley I'm disgusted by the NAS (wait for the Censorship)

Stuffed

I contacted the NAS wanting help as an adult who has been diagnosed with aspergers and now 34.

After a shambles of an advice line that to be totally honest was a waste of time after over a week of trying to get in contact with 2 people doing one persons job.

City Road Address and yet there is no call queue system and two part time people doing one persons job- shows how little they really want non residential people.

I receive direct payments and with the NAS allegedly championing Aspergers

(it seems to get donations) I expected that I would get some support and advice, not fobbed off to Citizens Advice.

Unhappy with what frankly I think comes close to fraud collecting donations from people believing they are donating to Autism/Aspergers Charity and yet when I have a dire situation-they couldn't care less.

I contacted a certain professor and he kindly offered to pass my experiences onto Mark Lever for me and has been a most pleasant person to chat via email to.

I'd hoped that there was some misunderstanding and a professor contacting the chief exec would result in some further contact and assistance.

But no, I had my carer's assistance to visit citizens advice and now have a dreadfully slow solicitor involved- but at least they listened and provided help.

I have also asked my MP to help and been told that they would intervene on my behalf.

So the net result as a documented Adult with written Diagnosis of Asperger hoping for help from the NAS- Nothing and for me the most shocking part of this is the fact that those less able than myself will have nowhere to turn to.

So I've reported the NAS to the charities commission- doubt much will happen

I fully expect the thread to get deleted- but then again it will only confirm that the NAS want people's money and Adults in Care in the community are left with no Support.

Thank You for NOTHING

Parents

  • Dear Stuffed
     
    I have emailed you directly so we can discuss further the issued you have raised outside of the community forum.
     
    In response to your question about what is available to you; the NAS have a wide variety of services and information many of these can be found on our website. Below are a series of links that will take you to a selection of them. Please bear in mind that the availability of services varies dependant on your location.
     
    Outreach services
     
    www.autism.org.uk/.../outreach-services.aspx
     
    Our flexible outreach service helps people on the autism spectrum to access opportunities and activities outside their home. This might include assisting people to take part in their favourite sport or attend a college course. We also offer social groups and out of school clubs which give children, young people and adults the opportunity to meet other people on the autism spectrum and develop social skills.
     
    Support Centres
     
    www.autism.org.uk/.../support-centres.aspx


    Our support centres provide a place for people with autism to come for support, social interaction and to develop new skills. We offer a wide range of groups, classes and activities outside the home that enable children and adults to pursue their interests and develop their life skills in a meaningful way. We also offer activities and support for families and carers of people with autism. For more details, select your local area below.
     
    Prospects
     
    www.autism.org.uk/.../employment-support.aspx

    Prospects is our employment and training service for people with an autism spectrum disorder (ADS) who wish to work. Our aim is that people with an ASD should have the same training and employment opportunities as non-disabled people. We also work with employers to help with the recruitment, training and retention of staff with an ASD. Some of our services are offered across the UK, others in specific areas.
     
    Social Groups
     
    www.autism.org.uk/.../social-groups.aspx
     
    For most people, the rules of social interaction come naturally. But having autism can make it difficult to communicate with other people and to make sense of social situations. We also offer social support at many of our support centres, or you can browse to see if we have a social group in your area.
     
    Autism Services Directory
     
    www.autism.org.uk/directory
     
    The Autism Services Directory is an online UK-wide database designed to help people with autism (including those with Asperger syndrome), their families and the people who work with them professionally to find out more about the services available to them. Through simple searches and browsing, users can find out about local and national services.
     
    Welfare Rights Service
     
    www.autism.org.uk/.../Welfare-rights-service.aspx
     
    Our Welfare Rights Service offers advice, information and support on all aspects of social security benefit entitlement. This includes advice on which benefits you may be entitled to, general advice on completing claim forms, what to do if you think a decision is wrong and how to appeal to a tribunal.

    Community Care Service

    www.autism.org.uk/.../Community-care-service.aspx

    Our Community Care Service offers advice and information about community care issues, including finding out what help you can get from your local social services department; how to access the help; and how to make a complaint to your social services department if you are not happy with their decisions or the services they offer.
    Some of the help that people affected by autism may be entitled to includes Direct Payments, day centres, respite services, or help with housing options. More information about community care for children and adults can be found here.

    Managing Money Website

    www.managingmoney.org.uk/

    We have developed a website and a workbook to help people on the autism spectrum learn about managing their money.
    The Managing Money website and workbook cover all aspects of managing money, including opening a bank account, budgeting, and compulsive spending. The website also includes video clips, interactive quizzes, questionnaires, downloadable resources and a virtual cash machine.

    I hope you find this sample of links to our services both informative and useful in finding what is available from the NAS.

    If anyone would like to discuss their specific situation and the help and services that are available to them you can contact our helpline here

    www.autism.org.uk/enquiry or call 0808 800 4104

    or the Supporter Care Team on 0808 800 1050. They are open Monday to Friday 10am to 4pm.

    Kind regards:

    Kelly H, Supporter Care Manager

Reply

  • Dear Stuffed
     
    I have emailed you directly so we can discuss further the issued you have raised outside of the community forum.
     
    In response to your question about what is available to you; the NAS have a wide variety of services and information many of these can be found on our website. Below are a series of links that will take you to a selection of them. Please bear in mind that the availability of services varies dependant on your location.
     
    Outreach services
     
    www.autism.org.uk/.../outreach-services.aspx
     
    Our flexible outreach service helps people on the autism spectrum to access opportunities and activities outside their home. This might include assisting people to take part in their favourite sport or attend a college course. We also offer social groups and out of school clubs which give children, young people and adults the opportunity to meet other people on the autism spectrum and develop social skills.
     
    Support Centres
     
    www.autism.org.uk/.../support-centres.aspx


    Our support centres provide a place for people with autism to come for support, social interaction and to develop new skills. We offer a wide range of groups, classes and activities outside the home that enable children and adults to pursue their interests and develop their life skills in a meaningful way. We also offer activities and support for families and carers of people with autism. For more details, select your local area below.
     
    Prospects
     
    www.autism.org.uk/.../employment-support.aspx

    Prospects is our employment and training service for people with an autism spectrum disorder (ADS) who wish to work. Our aim is that people with an ASD should have the same training and employment opportunities as non-disabled people. We also work with employers to help with the recruitment, training and retention of staff with an ASD. Some of our services are offered across the UK, others in specific areas.
     
    Social Groups
     
    www.autism.org.uk/.../social-groups.aspx
     
    For most people, the rules of social interaction come naturally. But having autism can make it difficult to communicate with other people and to make sense of social situations. We also offer social support at many of our support centres, or you can browse to see if we have a social group in your area.
     
    Autism Services Directory
     
    www.autism.org.uk/directory
     
    The Autism Services Directory is an online UK-wide database designed to help people with autism (including those with Asperger syndrome), their families and the people who work with them professionally to find out more about the services available to them. Through simple searches and browsing, users can find out about local and national services.
     
    Welfare Rights Service
     
    www.autism.org.uk/.../Welfare-rights-service.aspx
     
    Our Welfare Rights Service offers advice, information and support on all aspects of social security benefit entitlement. This includes advice on which benefits you may be entitled to, general advice on completing claim forms, what to do if you think a decision is wrong and how to appeal to a tribunal.

    Community Care Service

    www.autism.org.uk/.../Community-care-service.aspx

    Our Community Care Service offers advice and information about community care issues, including finding out what help you can get from your local social services department; how to access the help; and how to make a complaint to your social services department if you are not happy with their decisions or the services they offer.
    Some of the help that people affected by autism may be entitled to includes Direct Payments, day centres, respite services, or help with housing options. More information about community care for children and adults can be found here.

    Managing Money Website

    www.managingmoney.org.uk/

    We have developed a website and a workbook to help people on the autism spectrum learn about managing their money.
    The Managing Money website and workbook cover all aspects of managing money, including opening a bank account, budgeting, and compulsive spending. The website also includes video clips, interactive quizzes, questionnaires, downloadable resources and a virtual cash machine.

    I hope you find this sample of links to our services both informative and useful in finding what is available from the NAS.

    If anyone would like to discuss their specific situation and the help and services that are available to them you can contact our helpline here

    www.autism.org.uk/enquiry or call 0808 800 4104

    or the Supporter Care Team on 0808 800 1050. They are open Monday to Friday 10am to 4pm.

    Kind regards:

    Kelly H, Supporter Care Manager

Children
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