• Replies 32 replies
  • Subscribers 28 subscribers
  • Views 6110 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Frankley I'm disgusted by the NAS (wait for the Censorship)

Stuffed

I contacted the NAS wanting help as an adult who has been diagnosed with aspergers and now 34.

After a shambles of an advice line that to be totally honest was a waste of time after over a week of trying to get in contact with 2 people doing one persons job.

City Road Address and yet there is no call queue system and two part time people doing one persons job- shows how little they really want non residential people.

I receive direct payments and with the NAS allegedly championing Aspergers

(it seems to get donations) I expected that I would get some support and advice, not fobbed off to Citizens Advice.

Unhappy with what frankly I think comes close to fraud collecting donations from people believing they are donating to Autism/Aspergers Charity and yet when I have a dire situation-they couldn't care less.

I contacted a certain professor and he kindly offered to pass my experiences onto Mark Lever for me and has been a most pleasant person to chat via email to.

I'd hoped that there was some misunderstanding and a professor contacting the chief exec would result in some further contact and assistance.

But no, I had my carer's assistance to visit citizens advice and now have a dreadfully slow solicitor involved- but at least they listened and provided help.

I have also asked my MP to help and been told that they would intervene on my behalf.

So the net result as a documented Adult with written Diagnosis of Asperger hoping for help from the NAS- Nothing and for me the most shocking part of this is the fact that those less able than myself will have nowhere to turn to.

So I've reported the NAS to the charities commission- doubt much will happen

I fully expect the thread to get deleted- but then again it will only confirm that the NAS want people's money and Adults in Care in the community are left with no Support.

Thank You for NOTHING

Parents
  • Dear Stuffed
     
    Firstly let me assure you that the NAS value the opinions and experiences of people touched by autism and therefore your post has not been censored or removed.
     
    We take feedback very seriously, it is one of the most effective way for us to understand what we do well and where we need to improve, it also gives us the opportunity to give reassurance and in some cases allow us to share information with members of the community or our supporters to help them understand why we are sometimes limited in what we are able to offer.
     
    I would be more than happy to look into the frustrations you have come up against and for us as an organisation to respond to you directly in a more official and thorough capacity. To do this it would be most helpful to have some further details and information from you outside of this community group. I will therefore email you directly to discuss this further.
     
    I hope you will continue to make use of the community, sharing your experiences and opinions, these really do matter.
     
    I would like to encourage anyone that has any feedback about our work to use the feedback form on our website which can be found on the contact us page.
     
     
    Kelly H - Supporter Care Manager
Reply
  • Dear Stuffed
     
    Firstly let me assure you that the NAS value the opinions and experiences of people touched by autism and therefore your post has not been censored or removed.
     
    We take feedback very seriously, it is one of the most effective way for us to understand what we do well and where we need to improve, it also gives us the opportunity to give reassurance and in some cases allow us to share information with members of the community or our supporters to help them understand why we are sometimes limited in what we are able to offer.
     
    I would be more than happy to look into the frustrations you have come up against and for us as an organisation to respond to you directly in a more official and thorough capacity. To do this it would be most helpful to have some further details and information from you outside of this community group. I will therefore email you directly to discuss this further.
     
    I hope you will continue to make use of the community, sharing your experiences and opinions, these really do matter.
     
    I would like to encourage anyone that has any feedback about our work to use the feedback form on our website which can be found on the contact us page.
     
     
    Kelly H - Supporter Care Manager
Children
No Data