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Frankley I'm disgusted by the NAS (wait for the Censorship)

Stuffed

I contacted the NAS wanting help as an adult who has been diagnosed with aspergers and now 34.

After a shambles of an advice line that to be totally honest was a waste of time after over a week of trying to get in contact with 2 people doing one persons job.

City Road Address and yet there is no call queue system and two part time people doing one persons job- shows how little they really want non residential people.

I receive direct payments and with the NAS allegedly championing Aspergers

(it seems to get donations) I expected that I would get some support and advice, not fobbed off to Citizens Advice.

Unhappy with what frankly I think comes close to fraud collecting donations from people believing they are donating to Autism/Aspergers Charity and yet when I have a dire situation-they couldn't care less.

I contacted a certain professor and he kindly offered to pass my experiences onto Mark Lever for me and has been a most pleasant person to chat via email to.

I'd hoped that there was some misunderstanding and a professor contacting the chief exec would result in some further contact and assistance.

But no, I had my carer's assistance to visit citizens advice and now have a dreadfully slow solicitor involved- but at least they listened and provided help.

I have also asked my MP to help and been told that they would intervene on my behalf.

So the net result as a documented Adult with written Diagnosis of Asperger hoping for help from the NAS- Nothing and for me the most shocking part of this is the fact that those less able than myself will have nowhere to turn to.

So I've reported the NAS to the charities commission- doubt much will happen

I fully expect the thread to get deleted- but then again it will only confirm that the NAS want people's money and Adults in Care in the community are left with no Support.

Thank You for NOTHING

Parents

  • NAS11866 said:

    Is the advice line staffed by volunteers,or are they paid employees? That would make a considerable difference I would have thought.

    My son (AS) is just 18 so I haven't really had any experience of what is available for adults yet.

    If your son is just 18 then get the ball rolling for direct payments, be aware that depending where you live, direct payments are nhs partnership/council and in my area council want more DP users.Nhs foundation trust move money to government banking service off their accounts and claim poverty by not listing amounts in government bank accounts in relation to current account.

    The nhs foundation trust then go after dp users while the accounts show massive underspends.

    As you see older adults get very little help as highlighted by posters in this thread.

    Accept difference. Not indifference.

    We are the leading UK charity for people with autism (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.

    But not for us in this thread-notice the lack of official reply either acknolleging points raised or an offers of support. Could it be that because funding comes from council/social services for residential clients-NAS would rather do nothing rather than point out failures!

    This thread has been up almost 24 hours soon-how about a response NAS to a simple question.


    Thanks to the replies in this thread it shows my experience isn't isolated.



Reply

  • NAS11866 said:

    Is the advice line staffed by volunteers,or are they paid employees? That would make a considerable difference I would have thought.

    My son (AS) is just 18 so I haven't really had any experience of what is available for adults yet.

    If your son is just 18 then get the ball rolling for direct payments, be aware that depending where you live, direct payments are nhs partnership/council and in my area council want more DP users.Nhs foundation trust move money to government banking service off their accounts and claim poverty by not listing amounts in government bank accounts in relation to current account.

    The nhs foundation trust then go after dp users while the accounts show massive underspends.

    As you see older adults get very little help as highlighted by posters in this thread.

    Accept difference. Not indifference.

    We are the leading UK charity for people with autism (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.

    But not for us in this thread-notice the lack of official reply either acknolleging points raised or an offers of support. Could it be that because funding comes from council/social services for residential clients-NAS would rather do nothing rather than point out failures!

    This thread has been up almost 24 hours soon-how about a response NAS to a simple question.


    Thanks to the replies in this thread it shows my experience isn't isolated.



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