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Frankley I'm disgusted by the NAS (wait for the Censorship)

Stuffed

I contacted the NAS wanting help as an adult who has been diagnosed with aspergers and now 34.

After a shambles of an advice line that to be totally honest was a waste of time after over a week of trying to get in contact with 2 people doing one persons job.

City Road Address and yet there is no call queue system and two part time people doing one persons job- shows how little they really want non residential people.

I receive direct payments and with the NAS allegedly championing Aspergers

(it seems to get donations) I expected that I would get some support and advice, not fobbed off to Citizens Advice.

Unhappy with what frankly I think comes close to fraud collecting donations from people believing they are donating to Autism/Aspergers Charity and yet when I have a dire situation-they couldn't care less.

I contacted a certain professor and he kindly offered to pass my experiences onto Mark Lever for me and has been a most pleasant person to chat via email to.

I'd hoped that there was some misunderstanding and a professor contacting the chief exec would result in some further contact and assistance.

But no, I had my carer's assistance to visit citizens advice and now have a dreadfully slow solicitor involved- but at least they listened and provided help.

I have also asked my MP to help and been told that they would intervene on my behalf.

So the net result as a documented Adult with written Diagnosis of Asperger hoping for help from the NAS- Nothing and for me the most shocking part of this is the fact that those less able than myself will have nowhere to turn to.

So I've reported the NAS to the charities commission- doubt much will happen

I fully expect the thread to get deleted- but then again it will only confirm that the NAS want people's money and Adults in Care in the community are left with no Support.

Thank You for NOTHING

Parents

  • arty said:

    I know where your coming from the goverment 'says' they are advocats in helping adults with ASD, however I'm yet to see it. I too am an adult with ASD diagnosis and although I try my best to fit in with sociaty, I am mother, partner, employee as well as part time study. And at times life is tough, it seems there is loads of charities and organisations that help children and also even adults with severa forms of ASD but those that are on the cusp those who are more likely to be affected by mental health problems are not provided for. Please here our cry's and maybe even cut the mental health commisions bill   , provide some better suport and promote some good organisations to help adults with ASD.

    If your a child or a residential adult then there are revenue streams / funding.

    If your higher functioning and wanting support from the NAS you'll be greeted with a phone line that is constantly engaged, no call queueing or voicemail when I called and covered by what I was told by advice line two people doing one persons job.

    I wanted assistance to find a solicitor who could look at documented evidence of illegal behavour by a certain government agency.I hoped the NAS would know a suitable solicitor or assist in helping me find one

    I expected that calling the advice line that there would be someone to champion my cause and help me find a suitable solicitor with support and recommendations of the agencies failings identified by NAS the self proclaimed experts.

    Instead I was told there was nothing to offer and told to contact Citizens Advice, at no point was my ability asked or any assistance to contact Citizens Advice.

    I did however find a local Autism Somerset who gave good advice, moral support and seemed genuinely helpful within their limited capacity and means as a small group. They gave me some email contacts and seemed genuinely concerned

    So there you have it, I needed help and got none.

    I contacted a professor who helped me to point out to Mark Lever my experiences of the NAS and it's help line- I still got no help.

    I posted previously on here and asked for help- the advice line was all that was offered and nobody championed my cause.

    So if I have found it a stressful nightmare trying to get any assistance sorted, it shows that less able individuals without the luck to find information and any assistance will be totally stuffed.

    I honestly think it boils down to revenue streams and funding- because there is none to be had in my case=no help.

    I have been careful to not put anything other than the truth as I found it, this post has been up for hours and the silence is deafening.

    Nobody from the NAS has said we take on board your experience and will learn from it, nor have they contacted me to see if I need any assistance where they have been previously lacking.

    I still have an ongoing situation and hoped the NAS would be involved and support me- I won't hold my breath.

    I also have serious concerns that those less able than me will suffer injustice as any pleas for help fall on deaf ears.

Reply

  • arty said:

    I know where your coming from the goverment 'says' they are advocats in helping adults with ASD, however I'm yet to see it. I too am an adult with ASD diagnosis and although I try my best to fit in with sociaty, I am mother, partner, employee as well as part time study. And at times life is tough, it seems there is loads of charities and organisations that help children and also even adults with severa forms of ASD but those that are on the cusp those who are more likely to be affected by mental health problems are not provided for. Please here our cry's and maybe even cut the mental health commisions bill   , provide some better suport and promote some good organisations to help adults with ASD.

    If your a child or a residential adult then there are revenue streams / funding.

    If your higher functioning and wanting support from the NAS you'll be greeted with a phone line that is constantly engaged, no call queueing or voicemail when I called and covered by what I was told by advice line two people doing one persons job.

    I wanted assistance to find a solicitor who could look at documented evidence of illegal behavour by a certain government agency.I hoped the NAS would know a suitable solicitor or assist in helping me find one

    I expected that calling the advice line that there would be someone to champion my cause and help me find a suitable solicitor with support and recommendations of the agencies failings identified by NAS the self proclaimed experts.

    Instead I was told there was nothing to offer and told to contact Citizens Advice, at no point was my ability asked or any assistance to contact Citizens Advice.

    I did however find a local Autism Somerset who gave good advice, moral support and seemed genuinely helpful within their limited capacity and means as a small group. They gave me some email contacts and seemed genuinely concerned

    So there you have it, I needed help and got none.

    I contacted a professor who helped me to point out to Mark Lever my experiences of the NAS and it's help line- I still got no help.

    I posted previously on here and asked for help- the advice line was all that was offered and nobody championed my cause.

    So if I have found it a stressful nightmare trying to get any assistance sorted, it shows that less able individuals without the luck to find information and any assistance will be totally stuffed.

    I honestly think it boils down to revenue streams and funding- because there is none to be had in my case=no help.

    I have been careful to not put anything other than the truth as I found it, this post has been up for hours and the silence is deafening.

    Nobody from the NAS has said we take on board your experience and will learn from it, nor have they contacted me to see if I need any assistance where they have been previously lacking.

    I still have an ongoing situation and hoped the NAS would be involved and support me- I won't hold my breath.

    I also have serious concerns that those less able than me will suffer injustice as any pleas for help fall on deaf ears.

Children
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