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Recently Diagnosed

BlackHatMentor

A subsection for those who have recently been diagnosed would be useful. I personally went through confusion and in all honesty, am receiving absolutely no useful help via the nas. Perhaps a section like this would help people understand what the NAS can, and can not, help with as well as people being able to teach peopel coping mechanisms.

  • Well I am at university, and was diagnosed in second year.

    • In primrary the teachers didn't know because it wasn't very known.
    • In secondary the school nurse knew, but could not get me to open to people as I have mild paranoia - so she took it upon herself to look after me.
    • My best freind also has aspergers and has supported me since we met, thinking I already knew I had aspergers.

    I got diagnosed about a year ago, the NAS have arranged 1 hour a week with a carer, when the recommendation letter requested 2 hours.

    The interesting part is that the carer's have been absolutely no help, and I don't know what to do or say.

    1. I am unsure of what the NAS can do
    2. I don't want to offend the carer
    3. I have mild social anxiety caused by stress due to the carer

    Also I am constantly being told 'you only have mild aspergers, it is ok anyway'. My best m8 told me that, actually I simply have more confidence than most due to my father being an ex-bouncer, apart from that me and him are identical and he has been medicated half of his life.

    Speaking to my best freind later on tonight about it, to see what I should do.

    The full article is :

    http://anxiousforum.com/showthread.php?tid=32

  • Growing up with undiagnosed AS is an awful experience. I think that, in an ideal world, no child should have to go through that experience. I was once told that I was an 'obnoxious girl' by a lady at a checkout because I was throwing a tantrum-I was a teenager at the time. My dad reiterated the lady's comments back at home and comments like that have a lasting impact, they make you feel messed up and horrid

  • Before diagnosis I really thought that I had a personality disorder. I felt-and still do sometimes-a complete outsider and messed up person who could not be accepted anywhere. My self-esteem was low and I spent ages obsessing about my life and problems. To have the diagnosis of AS is very reassuring. I am what they call very high-functioning, although I have serious anxiety problems, concomitant OCD and difficulties relating to people in an intuitive way. I feel very alone in the world because I feel that my real self is constantly submerged beneath a mask of 'normality'. I often feel like I have a split personality. People tell me that I seem confident and out-going, but I am nothing of the sort. Talking for me is a coping mechanism, the more anxious I feel the more I talk. And I am very introverted-Iam always thinking about myself and my own needs and I wish I could be more open and emotionally engaged.

  • I was diagnosed c.9 months ago at the youthful age of 44 and, although I know I am still the same person as I was before the diagnosis, it knocked me completely for 6.  One of the big issues I have is expressing extreme emotions e.g. frustration when you can't believe someone just did something, or even how to acknowledge a simple complement (someone says "that's great" and my aspergers brain says "I know" quite legalistically and then a tug of war goes on inside my header wondering how I should react).  I am a Christian and I have an outlet of music - playing in Worship bands gives me an amazing peace.  This may seem strange if you are not a Christian, but if you are you may appreciate that it's like having a direct line to God, 1:1 contention in ADSL Speke, and at that point of diagnosis I heard a voice from God saying "I've always know you were aspergers, that's why I gave you a gift to expressing your emotions through Worship to me".  This isn't a preachy spot, just MY REALLITY.