Sigh... a long winded whinge....

Hi guys,

Just having a bit of a "why me" moment really... Undecided


Had a doozy of a meltdown last night, ds (6) threw a toy at me, kicked me in the stomach, licked the carpet, banged his head on the wall etc etc etc.. We have them on average of fortnightly atm which i know is quite good (they used to be every other day but we are getting there) but they are just getting so out of control as he gets stronger :(


Tried to have the "calm down" chat afterwards and he brought up the toy he had thrown and for about 3 seconds i thought OMG hes actually showing remorse.. but then he went onto talk about what part of the toy hit me, was it this part of that part, if this part hurt me this much would that part have hurt more or less? etc etc - as he was calmly chatting about this my heart was actually breaking into teeny tiny pieces as it dawned on me that this likely wont change :(

Got an appointment on 20.11.12 for THE chat re: medication - DS is showing significant signs of Sensory issues (mostly hyposensitivity) but also quite alot of ADD/ADHD signs (usually related to overstimulation though)... I just want someone else to make the decisions for a bit? Does anyone ahve any experiences positive/negative with medication? I just feel like such a cop out for even considering it....... But i honestly wonder how much longer i can contain the meltdowns before me or someone else gets really bloody hurt!!


Im sick to the back teeth of Speech and Language (whom i am actually starting to dislike quite intensely!!), OT popped it, promised the world then disappeared again, my husband works away and Ds's dad is adament that its just a phase he will outgrow!!!


I feel so alone right now :(

Parents
  • Sorry, I didn't mean to suggest your son was having a lot of meltdowns. I used to have meltdowns virtually every day for a time when I was a bit older than your son. They are absolutely draining, and because of the surge of adrenalin they put me on edge of "flight or fight" all day long, eventually ending in a shutdown.

    Does your son enjoy all of the activities he is doing? Again I stress I can only talk from my own experience, and every child is different. At your son's age I had no idea that I could stop anything happening, so I went along with everything that my parents did to me (I phrase it this way, because I was absolutely passive to everything they arranged for me to do).

    I don't really know how to describe this, but the NT world was completely alien to me. I had no idea of how to explain any emotions or feelings at all, but also I didn't have any frame of reference to explain the world at all. Things made literally no sense, and although I had language I had no way of asking the right questions or explaining anything about my experience of the world. I can only describe it as being on an alien planet where everything is not like the world of inside my own head, and no-one can explain anything in the language that I understand.

    I could only understand direct, simple, logical statements, and the response to my parents would be nothing or a very simple response. So for example if I was hurting someone by throwing a toy, if my Mother had said something like "You threw that toy. It hit me and hurt me. It is not OK to do that. Do you understand?", and this said in a very flat calm way, because any kind of raised voice or heightened emotion from my parents just sent me off into a pre-meltdown sequence where I can't hear and I just want to get away. My response would not be what my parents would expect, but would be very brief and flat, but also true. I have noticed that NTs sometimes don't get that people with Aspergers can give an emotionally flat statement, which is also completely true. I often say "I am not feeling very relaxed" in a flat way, this means I have tons of adrenalin surging round my system and I am about to have a meltdown if the situation is not changed.

    I hope this helps, and of course I say again, every child and adult is different.

Reply
  • Sorry, I didn't mean to suggest your son was having a lot of meltdowns. I used to have meltdowns virtually every day for a time when I was a bit older than your son. They are absolutely draining, and because of the surge of adrenalin they put me on edge of "flight or fight" all day long, eventually ending in a shutdown.

    Does your son enjoy all of the activities he is doing? Again I stress I can only talk from my own experience, and every child is different. At your son's age I had no idea that I could stop anything happening, so I went along with everything that my parents did to me (I phrase it this way, because I was absolutely passive to everything they arranged for me to do).

    I don't really know how to describe this, but the NT world was completely alien to me. I had no idea of how to explain any emotions or feelings at all, but also I didn't have any frame of reference to explain the world at all. Things made literally no sense, and although I had language I had no way of asking the right questions or explaining anything about my experience of the world. I can only describe it as being on an alien planet where everything is not like the world of inside my own head, and no-one can explain anything in the language that I understand.

    I could only understand direct, simple, logical statements, and the response to my parents would be nothing or a very simple response. So for example if I was hurting someone by throwing a toy, if my Mother had said something like "You threw that toy. It hit me and hurt me. It is not OK to do that. Do you understand?", and this said in a very flat calm way, because any kind of raised voice or heightened emotion from my parents just sent me off into a pre-meltdown sequence where I can't hear and I just want to get away. My response would not be what my parents would expect, but would be very brief and flat, but also true. I have noticed that NTs sometimes don't get that people with Aspergers can give an emotionally flat statement, which is also completely true. I often say "I am not feeling very relaxed" in a flat way, this means I have tons of adrenalin surging round my system and I am about to have a meltdown if the situation is not changed.

    I hope this helps, and of course I say again, every child and adult is different.

Children
No Data