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How can I help my daughter? Please help.

Daisy

Hi

My daughter is 8 in yr3 of main stream school with a diagnosis of 'mild autism'. Her school does not recognise that she has any difficulties and have not even given her an IEP. I desparately want to help her tackle her social difficulties. She finds it very difficult to communicate with her peers. She feels very uncomfortable and struggles to talk or make eye contact with any of them. I know she needs some help but I don't know what to do.

Parents

  • This seems to be the problem frequently manifest when young adults seeks support services post transition but are deemed at an interview to be perfectly capable because they "present" well over 15 or 20 minutes, when they may not do so well looked at over hours, days or weeks. Or where people are deemed to have benefitted from a course of medication or therapy, but still cannot fit into a social situation, which is a fundamental cause of the stress and anxiety thdey were being treated for.

    The Autism Act, and the reviews/consultations following, such as health and social services, don't seem to be picking up on this issue. They still define autism and aspergers as people who present obvious symptoms or present obvious difficulties that need support. If you don't "present" the expected symptoms you don't have autism/aspergers or at best are deemed "mild".

    It is certainly perplexing. I guess I'm in the mild or managing category, though the words used were "good coping strategies". I didn't know the cause when I was younger but I certainly didn't present well. I've improved a lot over time in formal situations. I still have no social life, close friendships or relationships, and am bar my own efforts naturally reclusive, but that doesn't "present" most of the time in formal everyday situations. An interview would not show up any sign of aspergers.

    So has the Autism Act mauybe missed a trick?

Reply

  • This seems to be the problem frequently manifest when young adults seeks support services post transition but are deemed at an interview to be perfectly capable because they "present" well over 15 or 20 minutes, when they may not do so well looked at over hours, days or weeks. Or where people are deemed to have benefitted from a course of medication or therapy, but still cannot fit into a social situation, which is a fundamental cause of the stress and anxiety thdey were being treated for.

    The Autism Act, and the reviews/consultations following, such as health and social services, don't seem to be picking up on this issue. They still define autism and aspergers as people who present obvious symptoms or present obvious difficulties that need support. If you don't "present" the expected symptoms you don't have autism/aspergers or at best are deemed "mild".

    It is certainly perplexing. I guess I'm in the mild or managing category, though the words used were "good coping strategies". I didn't know the cause when I was younger but I certainly didn't present well. I've improved a lot over time in formal situations. I still have no social life, close friendships or relationships, and am bar my own efforts naturally reclusive, but that doesn't "present" most of the time in formal everyday situations. An interview would not show up any sign of aspergers.

    So has the Autism Act mauybe missed a trick?

Children
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