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Autistic burnout while supporting a seriously ill parent - where do I start?

ThePixelPusher

Hello everyone,

At the moment, my dad is seriously ill in hospital and I'm trying to support him while also trying to navigate my own health, as well as the GP, social care and benefits. My Dad has always been my filter to the outside world, and I've realised that I think I'm approaching autistic burnout and I'm finding executive functioning much harder than usual.

I've contacted my GP, Macmillan, Carers Support West Sussex and a few local organisations, but I wondered if anyone who has been through something similar had any advice.

In particular I'd be interested to know:

  • What support actually helped you when you reached burnout?
  • Was there an organisation that made a real difference?
  • Did anyone find an autism advocacy service that was genuinely useful?
  • If you claimed PIP as an autistic adult, what evidence did you find was most helpful?

I'm not looking for medical advice, just to learn from other autistic adults who have been through similar situations.

Thank you.

Parents

  • Hi ThePixelPusher,

    I am sorry to hear that you have such a lot on your plate at the moment.  This can be a very tricky situation.  

    I am sure our community members will share their own experiences.  In the meantime here are some links which may be useful.

    Autistic fatigue and burnout provides some advice and guidance on burnout.

    Autism Services Directory  you may be able to source some local advocacy options 

    Benefits we have some information on benefits here.

    I hope this information gives you a useful starting point.

    Take Care

    Suzanne Mod

  • in reply to Suzanne Mod

    Thank you, Suzanne.

    I really appreciate the links. I'll have a look through the advocacy directory as that's one of the areas I'm struggling with the most at the moment.

    I'm finding that trying to navigate the GP, hospital, social care, benefits and caring responsibilities all at the same time is becoming overwhelming. I'm hoping to speak to my GP next week about getting some additional support in place.

    Thank you again for taking the time to reply.

Reply
  • in reply to Suzanne Mod

    Thank you, Suzanne.

    I really appreciate the links. I'll have a look through the advocacy directory as that's one of the areas I'm struggling with the most at the moment.

    I'm finding that trying to navigate the GP, hospital, social care, benefits and caring responsibilities all at the same time is becoming overwhelming. I'm hoping to speak to my GP next week about getting some additional support in place.

    Thank you again for taking the time to reply.

Children
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