Hello everyone,
At the moment, my dad is seriously ill in hospital and I'm trying to support him while also trying to navigate my own health, as well as the GP, social care and benefits. My Dad has always been my filter to the outside world, and I've realised that I think I'm approaching autistic burnout and I'm finding executive functioning much harder than usual.
I've contacted my GP, Macmillan, Carers Support West Sussex and a few local organisations, but I wondered if anyone who has been through something similar had any advice.
In particular I'd be interested to know:
- What support actually helped you when you reached burnout?
- Was there an organisation that made a real difference?
- Did anyone find an autism advocacy service that was genuinely useful?
- If you claimed PIP as an autistic adult, what evidence did you find was most helpful?
I'm not looking for medical advice, just to learn from other autistic adults who have been through similar situations.
Thank you.
