idk what to do anymore

hi, idk what to even say but i’m so desperate for some form of help. i think im autistic. im waiting on an assessment atm but that’ll be a lifetime. i got diagnosed with bpd which i disagree with. i’ve begged for help. autism ni were useless, told me to phone the autism service where i live to see where i am on the list then told me i can’t have help after i said everytime i call it tells me try again later. i give up trying to call as it’s pointless anyways, im just gonna be told i still have 5+ years to wait. autism ni have since ignored me. i then emailed autism initiatives and they said they can’t help as i don’t have a diagnosis then gave me a list of places to contact, all of them apart from one which was autism ni were for people under 18 which was great as i am in fact 22 (which they did know) so it was a list of useless places because of my age. im just lost. idk what to do. 

Parents
  • Hey shannon_04, welcome to the forum. Here at least you can don't need a diagnosis to chat about the difficulties of autism and have a bit of connection.

    Waiting times are all over the place and can be very hard to deal with. I think when it's so long, it's almost easier to live in an area that doesn't have any adult options except private, as then you know the NHS can't help, but when it's there but you can't reach it it must feel awful. Try take it easy on yourself as it's out of your hands.

    Either way, one thing that might be a good place to start is trying to break down what you actually need -I'm afraid autistic adults often don't get a lot of support, so trying to do as much as you can yourself is a place to start - after you figure it out you can see if there is help with any of the smaller pieces.

    Like going and speaking to your GP and saying you aren't coping, maybe they can offer some kind of therapy? And if you do, try then ask for one that is knowledgeable in neurodiversity so you are understood? Figuring out your needs and breaking this big scary thing of 'what do I do', into what I can do for this smaller thing first, then try and figure out the next bit. It's more manageable and less daunting that way.

    If it's about work, or benefits, (as the most pressing need to start with), then you can start asking where you can get help for each bit. It's very hard but often helping yourself is the only option anyway.  Also, finding ways to be calm to deal with anxiety,  and be more grounded is also worth trying, there is often talk about what people have tried here, and you need to find something that helps calm your nervous system that works for you, as everyone is different! (Try multiple things!) 


    Small steps, finding small achievable goals is a good way to deal with such a big problem.


    I wish you well. 

Reply
  • Hey shannon_04, welcome to the forum. Here at least you can don't need a diagnosis to chat about the difficulties of autism and have a bit of connection.

    Waiting times are all over the place and can be very hard to deal with. I think when it's so long, it's almost easier to live in an area that doesn't have any adult options except private, as then you know the NHS can't help, but when it's there but you can't reach it it must feel awful. Try take it easy on yourself as it's out of your hands.

    Either way, one thing that might be a good place to start is trying to break down what you actually need -I'm afraid autistic adults often don't get a lot of support, so trying to do as much as you can yourself is a place to start - after you figure it out you can see if there is help with any of the smaller pieces.

    Like going and speaking to your GP and saying you aren't coping, maybe they can offer some kind of therapy? And if you do, try then ask for one that is knowledgeable in neurodiversity so you are understood? Figuring out your needs and breaking this big scary thing of 'what do I do', into what I can do for this smaller thing first, then try and figure out the next bit. It's more manageable and less daunting that way.

    If it's about work, or benefits, (as the most pressing need to start with), then you can start asking where you can get help for each bit. It's very hard but often helping yourself is the only option anyway.  Also, finding ways to be calm to deal with anxiety,  and be more grounded is also worth trying, there is often talk about what people have tried here, and you need to find something that helps calm your nervous system that works for you, as everyone is different! (Try multiple things!) 


    Small steps, finding small achievable goals is a good way to deal with such a big problem.


    I wish you well. 

Children
No Data