Roller coaster

I'm sorry fir sharing this. It's gonna be short. I have a roller coaster, I have my appointment dates for assessment, and once I feel happy about it, then anxious, then I feel that I regret that I have them, and feel like going to cancel it, but then I'm afraid of doing something I would regret later. I'm also afraid of getting autism diagnosis,  I'm afraid I will regret having it. Then I'm afraid of being told I'm not autistic or being totally dismissed. Recently I saw a video of Uta Frith complaining about autism misdiagnosis and overdiagnosis. But then I concluded, that she should tale the responsibility and not complain about people getting the diagnosis and I also added that it's interesting that she is upset about people being misdiagnosed with autism (yes a false negative diagnosis is possible) but she seems to be oblivious to the fact that there are a lot of people misdiagnosed with other conditions. Nobody is upset about misdiagnosis in depression or bipolar, tourette etc. Many people, especially adults who get the late autism diagnosis were diagnosed/misdiagnosed with other conditions earlier. 

So I have a lot of anxiety because I have no idea how it feels to have this diagnosis, I don't know how I will feel, if it helps me or not, I don't know what will happen next. Is there anyone who went through this?

Parents
  • Your thoughts are quite normal, well quite normal for autistic people, I’m sure you get my meaning. I had all of the same thoughts, I am autistic, I’m not autistic, I’m not like other autistic people, they may think I’m trying to deceive them and be angry with me.

    Me telling you not to worry will change nothing, Autistic people are excellent at thinking about every single scenario possible when a task is coming up.

    The person or people who are there to assess you are not there to catch you out, I found they put me at ease and most probably got more out of me from being relaxed. I wanted a positive outcome, but was scared of either possibility, sorry It sounds like I wanted to be autistic, I didn’t, like most I just wanted to know definitely why. I had people tell me I shouldn’t say I’m autistic because I had no diagnosis, I wanted also to shut them up.

    I knew I’m autistic, I couldn’t think of anything else it could be. Before diagnosis, I imagine every late diagnosed adult has researched autism for what seems like forever.  Just be you and good luck.

Reply
  • Your thoughts are quite normal, well quite normal for autistic people, I’m sure you get my meaning. I had all of the same thoughts, I am autistic, I’m not autistic, I’m not like other autistic people, they may think I’m trying to deceive them and be angry with me.

    Me telling you not to worry will change nothing, Autistic people are excellent at thinking about every single scenario possible when a task is coming up.

    The person or people who are there to assess you are not there to catch you out, I found they put me at ease and most probably got more out of me from being relaxed. I wanted a positive outcome, but was scared of either possibility, sorry It sounds like I wanted to be autistic, I didn’t, like most I just wanted to know definitely why. I had people tell me I shouldn’t say I’m autistic because I had no diagnosis, I wanted also to shut them up.

    I knew I’m autistic, I couldn’t think of anything else it could be. Before diagnosis, I imagine every late diagnosed adult has researched autism for what seems like forever.  Just be you and good luck.

Children
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